Rare Sisters: Beyond Batten Disease

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pulchraesamicamea

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A beautiful story about a Catholic family with two daughters with Batten Disease.
I personally have a rare disease and this story has been impacting me so deeply and so beautifully.
 
I was going to share this too.

I have just finished watching short documentary of two Catholic parents raising four beautiful children, two of their children: Cecilia and Lily have been diagnosed with CLN3 Batten Disease.

Such a beautiful and spiritual family. Sad yet very powerful.
 
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