V
vester444
Guest
Hi all,
You have been a wonderful “family” to me here, and I oftentimes write, and oftentimes just lurk and pray on my lunch hour.
My daughter is 2 years old now, and has a white spot on her leg and some bumps on her nose (which, you know could just be a spot and some bumps) and none of the doctors are “worried” but it could be tuberous sclerosis, but PROBABLY IS NOT, but you know, I’m a worrier. We had a bit of a rough patch (putting it lightly) and my husband has segmental neurofibromatosis and tumors all over his leg at the age of 32, so we are a bit “raw” etc. So we are just getting a genetic test done for her to make sure its not tuberous sclerosis, which is probably going overboard, but I just have to “know” that she is ok, etc.
Can you all say a prayer for her, that she is going to be fine? I would appreciate it - you are all some great prayer warriers on here…
As a sidenote, HOW can I stop the worry, the anxiety, the fear, the (gasp) almost despair I feel? I just have never been able to shake it after my husbands diagnosis 4 years ago. He is doing ok, not dying, but in constant pain, ugh. Anyway he is such a wonderful person, and patient, but I have become raw and nervous and scared and fearful over EVERYTHING anymore…
I know I know - pray and give it up to God. I know I know - dont fear or have despair, its a sin against God. I know I know…but how do you STOP??? How??? Please someone - give me some real tools, because I’m so anxious - its like I want all the answers and to know everything is going to be ok forever, because I am just not strong enough (and people say…oh sure, you are strong enough…but I’m just not…)
Vester
You have been a wonderful “family” to me here, and I oftentimes write, and oftentimes just lurk and pray on my lunch hour.
My daughter is 2 years old now, and has a white spot on her leg and some bumps on her nose (which, you know could just be a spot and some bumps) and none of the doctors are “worried” but it could be tuberous sclerosis, but PROBABLY IS NOT, but you know, I’m a worrier. We had a bit of a rough patch (putting it lightly) and my husband has segmental neurofibromatosis and tumors all over his leg at the age of 32, so we are a bit “raw” etc. So we are just getting a genetic test done for her to make sure its not tuberous sclerosis, which is probably going overboard, but I just have to “know” that she is ok, etc.
Can you all say a prayer for her, that she is going to be fine? I would appreciate it - you are all some great prayer warriers on here…
As a sidenote, HOW can I stop the worry, the anxiety, the fear, the (gasp) almost despair I feel? I just have never been able to shake it after my husbands diagnosis 4 years ago. He is doing ok, not dying, but in constant pain, ugh. Anyway he is such a wonderful person, and patient, but I have become raw and nervous and scared and fearful over EVERYTHING anymore…
I know I know - pray and give it up to God. I know I know - dont fear or have despair, its a sin against God. I know I know…but how do you STOP??? How??? Please someone - give me some real tools, because I’m so anxious - its like I want all the answers and to know everything is going to be ok forever, because I am just not strong enough (and people say…oh sure, you are strong enough…but I’m just not…)
Vester
