From Emily to all you as well,
emilyalex
Registered User Join Date: Oct 2006
Location: Tomball, TX
Age: 35
Posts: 45
Hi everyone. I have good news, as unbelievalbe as it seems to say that right now. My precious husband is HOME! By some miracle, Hospice was able to make all the arrangements, get the equipment and medication delivered and get him in an ambulance for the transport home. By 8pm tonight, he was resting very comfortably in our room.
This morning while I was at home showering, he called me twice. Very unusual because he had been very out of it the last few days. The second time, he said, “I miss you. When can I come home. That was part of the bargain.” I told him, of course, that I missed him and that I was working very hard to get him home. I think the oxygen was still a bit of a worry(things are just fine so far), but the doctors and Hospice knew how much he wanted to be at home with me. When I told him he was headed home, he smiled and gave me a thumbs up, and said, “I’m happy.” As the paramedics lifted his stretcher out of the ambulance in our driveway, he was smiling. We got him settled into bed and I put on an Enya CD, both to comfort him and to drown out some of the noise from the two oxygen machines. As soon as he heard the music, the biggest smile I"ve seen in a while appeared on his face. Just after that, he reached his hand down from the hospital bed to call over one of our beloved shelties, Austin. Although Austin was a little too afraid at that moment to go to Wheeler, it was still touching. I held Maddy, our other sheltie up to him, and he found the strength to reach his hand up and pet her for a moment. They are our babies, our only children.
Although I am beyond exhausted, I am so thankful that we are at this place. I promised to honor his wishes to the very end and this was a big part of that commitment. Another benefit is now family and friends can visit me and provide me the emotional support I am starting to need more of every day.
Before I crawl comfortably into bed near my best friend and soul mate, I feel I must first say to you all how much you mean to me. That you would care so much for someone you hardly know is amazing. Your kinds words have been a blessing to me, someone who is going through not only a terrible loss, but experiencing much doubt about my role in trying to cure him. I don’t know if I am able to express in the appropriate words how much I appreciate you all, so I will just say that I love you all, every one of you. I will never forget what you have done for me.
Good night.
Emily
Husband diagnosed 10/19/2006. HCG over 100K, AFP 770, Extragonadal Germ Cell Tumor/TC, Advanced Stage III with yolk sac tumor and choriocarcinoma, with mets to lung, brain, lymph nodes and liver, 4XBEP finished 12/25/2006. Began HDC 2/12/2007 at IU. Brain lesions found 4/2007, began radiation, HDC failure 5/07.