Caring for elder in home

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Is anyone taking care (24/7) of elder parent or spouse, something like that, in all areas of daily living? I am, with my dear husband’s loving support, taking care of my elderly mother (93) who suffers from Alzheimer dementia, memory loss, brittle bones (has suffered both hips breaking within 5 years of each other), so has very limited mobility, etc. I would like to know how it goes for you and about how to keep working prayerfully when the goal of self sacrifice (wondering how long will this continue, and how bad is it going to get) gets away from me. Just want to chew it over if you happen to identify.
 
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grotto:
Is anyone taking care (24/7) of elder parent or spouse, something like that, in all areas of daily living? I am, with my dear husband’s loving support, taking care of my elderly mother (93) who suffers from Alzheimer dementia, memory loss, brittle bones (has suffered both hips breaking within 5 years of each other), so has very limited mobility, etc. I would like to know how it goes for you and about how to keep working prayerfully when the goal of self sacrifice (wondering how long will this continue, and how bad is it going to get) gets away from me. Just want to chew it over if you happen to identify.
My sympathies on the illness of your mother. I can somewhat identify with what you are going through, although I my parents did not live with me. I moved them to an appartment close to me, and later to other facilities as their illnesses progressed.

It may feel like what you are going through will last forever, but it won’t. My parents died a couple of years ago. Reflecting back, I can see how God used my parents illness to strengthen my sister and me. Just as trainers add more weights to build athletes’ muscles, God strengthens us spiritually by adding more weight. (And sometimes that weight is the 115 pound body of our incapacitated mothers.)

Yesterday I ran across some of the books that I found helpful during that time. One was Caring for Your Aging Parents (or something like that.) It’s written for Catholics and the suggestions include things like calling a priest at appropriate times for the annointing of the sick, etc. Another book was Prayers for Caregivers" whcih includes lots and lots of prayers for specific difficulties. I also reflected a lot on life and death a lot, reading the Bible and writings of saints to keep a Christian perspective.

I will say a prayer for you. And I admire you for caring for your mom.
 
Yes, I did it for seven years. It took a lot of cooperation and sacrifice from my spouse and children but we have never regrettted it. One thing we employed was using Adult Day Care Centers to keep my mother mentally active. She had Alzheimer’s and could attend the activities which were structured and it kept her mentally active. It also allowed me the time to go grocery shopping, go to the dentist, even work a full time job,.you name it when she was at day care.
When she became to ill to go any longer, we recruited part time help through an agency and finally enrolled her in hospice care to assist us in our home care and support us in so many ways. When our sons were returning to college, we were able to transfer her for a few days for respite care which allowed us to travel with our sons and their luggage to school. It also allowed us a breather to recoup our own resources…caregivers can so easily become burnt out. I have never ever regretted the choice we made to keep our mother at home with us, allowing her to die in her own bed surrounded by the love and care of all our family members.

Whatever decision you make…pray and pray always. It is exactly what got us through the tough times as well as the good times.
 
Thanks for the messages. Prayer IS the answer. The Lord gives me the strength when I let myself fear I have to take care of everything (meaning controlling the outcome). Mass this morning is more than I can describe. I pray my Mother gets to go straight to heaven and her suffering in this life brings her to Our Lord reunited with her loves, she has missed them so. That is one of the hard things for me to answer, she will ask - “Where in the world is Denny? Do you know how he is, etc.” At first I would tell her, “he is with Dad and Grandma about 5 years now”. Then it seemed I was making her try to grasp his passing. So I now just say, “We have to pray for him, Mom.” Sometimes she pursues it and then will say, “Funny, I can’t remember any of that happening”. My husband and I have to laugh to ourselves over some other million times repeated questions like, “where is my dog? He was here when I came here”.
Just the other day when I was helping my Mom into bed for the night, she said "I like it when you take care of me - you know just how - and said “my little baby girl”. That moment that Our Lord gave to me will be with me always. Thank you God for letting me take care of my Mom.
 
I am a single man taking care of my mother, who tends to her personal needs independently. I love what I am doing. I use my spare time for prayer and other devotions, such as watching EWTN, bible reading, reading the catechism and other spiritual works.

In the same breath, a relative has dumped this responsibility on me. I have no choice in the matter.

I expect to be a pauper before I die, as a result of the situation I am in. Is it too much to ask? Who am I to question God? Who am I to disparage poverty? It will be my blessing to accept what God has in store for me. Praised be his holy name.
 
My support for you BayCityRick - is your mother mentally ok? I have an older sister; our younger brother died five years ago when our Mom suffered her right hip breaking. So many reasons for so many years has left myself and husband to deal with difficulties. It has taken me quite awhile to realize that “help” from my sister isn’t realistic; once that brick fell on my head I found I wasn’t hindered by her involvement either. Through phone calls we share conversations about our children and of course how Mom is doing, but I try to keep a positive spin on the “operational” details.

The Council on Aging has been helping for many years now. They started to help with meals on wheels, personal care assistance and housekeeping when Mom was still in her home. Then it was no longer possible to keep her in her home even with my daughter and I each making a trip over there (morning and evening) to check on her and give her medications. The last year she has been with us in our home. A home health aid comes in twice a week to give Mom a shower, her condition requires an Alzheimer nurse specialist who comes once per week, she has been a real big help. Medicare provides for this - nursing homes are LOTS more expensive so their preference is that the elder person be cared for at home. Having had Mom in nursing homes for rehab therapy after her hip surgery - I really want her to spend the rest of her days here and be as comfortable as possible in her own bed when her time comes.

Council on Aging may be able to help you with your Mom also.
Goodnite to you and God Bless.
 
I took care of my beloved mother for over 8 years prior to her passing. For part of that time, I also had the care of her husband. (My stepfather).
Mother was mentally sharp up to the very end. Her care was hard work, but I loved her dearly & she was a joy, even when I was physically drained.
He was another story…If she had not been here, I would have walked–no choice. He did not know me, & I was often in actual physical danger from him. He would have violent episodes…I would have had to put him in a nursing home–or turn him over to his blood kin, who were:( conspicuous by their absence.His sudden death by heart attack was actually a relief to me, as I was at the end of my ability to deal with him.
A lot depends, you see, on individual cases. When Mama was in the hospital for the last time, she had a broken leg, & I was asked “how will you take care of her?”…I said, her bed is set up, with room for one of those lifts to get her in & out of bed…She never made it home, & I still wish I had her here right now…She would have been 92 on Pearl Harbor day.
May God richly bless you, & all who are caring for elderly parents. It’s a tough, tough job, but the rewards are greater than can ever be imagined.
 
I helped my father care for his elderly mil (she was 92) while he was alive. I worked full time, my Dad ran his own business, and Velva was a - uh, what’s the word, what’s the word - a CHALLENGE, yeah that’s it…a CHALLENGE. She had outlived her husband and her daughter, hated me, was suffering from dementia, wasn’t sure where she was half the time and was not happy that my father was taking the time to re-examine his life (he eventually reconciled with the Church, made formal amends to my mother, all before he died. Lucky for him, my mom had always remained his dear friend even when she wanted to brain him for his immoral behavior). I was exhausted, trying to go over there on the way to work to help her in the morning, get her ready for the day, cleaned up, fix her breakfast, put something out for lunch, then come back after work…eventually, I did (for the last year of my Dad’s life) have to get someone who would come in during the day for at least four or five hours to visit with her and help me with light housework. I discovered that, because my father was a veteran, he was eligible for some help through a Caregivers organization that paid a little bit towards this extra help.

I will tell you it was very hard. I thought at times I was not going to make it. Prayer helped. My AA meetings helped. When my father died, I made the decision to track down her ‘little brother’ in Silver City, New Mexico and I flew her back there. We found a nice convalescent home that her RR pension could pay for and got her settled. She died there about 6 months after she arrived - she was 94.

I found out how strong I was and I found out how important it is for a widow woman without children (me) to have adequate insurance to cover my care if I live that long.
 
This a word of warning to those 24/7 home-caregivers.

Time after time ( but not every time) 24/7 caregivers neglect themselves. 24/7 caregivers often have to follow a loved one into a nursing home or hospital because their own health has deteriorated.

Get all the help you can possibly get. Try not to do it alone 24/7…it isn’t healthy for your body, mind or relationships. There is some relief and help for most…please do what you can to get help.
 
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contemplative:
This a word of warning to those 24/7 home-caregivers.

Time after time ( but not every time) 24/7 caregivers neglect themselves. 24/7 caregivers often have to follow a loved one into a nursing home or hospital because their own health has deteriorated.

Get all the help you can possibly get. Try not to do it alone 24/7…it isn’t healthy for your body, mind or relationships. There is some relief and help for most…please do what you can to get help.
here is place to start to get help

What Services Are Available to Help Caregivers?
 
Hi everyone,
My mom has early alzheimer’s (she is 85) and she is living with my dad who will be 90 - he still drives and does most of the chores. They live about 12 miles from me. I am 60 and still work full time and I am married. I spend all spare time at their house and do laundry, take dad food shopping, and do their banking. Mom still cooks and is doing very good so far (she is on aricept). They also have a house that is paid off and I am Power of attorney for them and do the banking for my dad. I also have two brothers that live near them too. Anyway, I am a nervous wreck about them - I don’t want to quit my job and take care of them - I want to stay in my own home. Dad is old fashioned Italian and expects his family to take care of mom as she gets more advanced. I am trying to take it a day at a time and I go to daily Mass and ask Jesus to help me make the right decisions and to also make right financial decisions. I don’t want mom to ever go to nursing home (no one in my family ever has) and I know she eventually will have to. I know being scrupulous I will have a lot of stress and doubts about choices that I have to make. I live in an apartment and will probably have to take mom with me if Dad is no longer here and hire someone to care for her while I go to work. Unless, of course, retirement has arrived (another few years). Sorry to blab on and on but this is an obsession with me and I am losing sleep with worry. Thanks for listening and I salute all those who are caregivers. maryann
 
I care for my mother who has severe Alzheimer’s. Before that I cared for my father(now deceased). It is the hardest thing I have ever done but also the most fulfilling. I hope everyone in this situation can get to a support group. Mine is tomorrow night. Most months that is my one night out alone. Quitting my job, selling my home, closing my business and moving in with my mom were all tough decisions but I think I made the right ones.
 
Marypar - I can identify with your story also. For years I helped maintain my mother and brother (he died five years ago). They lived together in Mom’s home (brother was very dependent on her, had major illness and compounded all with his life choices till he lost the ability to recover). It was an emotionally exhausting struggle then when Mom had her first hip break, she was in hospital and nursing home for rehab therapy, my brother couldn’t take care of himself and be responsible (no surprise there, he abused all prescription medications and anything else he could acquire, legal or not). I fought all kind of feelings toward him but held on to a sorrowful love. All what happened is a story of its own. He life ended peacefully, asleep in his bed, tv going, no evidence of personal suffering, one night while Mom was still in the nursing home. Getting through all that followed was so very tough. I thank God for my husband and children, especially our oldest daughter who has been my wonderful helper. I have had many feelings of “I am not dealing with this right, its taking too much out of my life, it’s wrong and I have to find a better way”.
I came to realize many things through all this; my brother was
loving and gentle, intelligent and a great sense of humour. I know he prayed, went to “communal confession” and received the Holy Eucharist at Mass. I pray for him and know he prays for me!
My mother’s condition worsened until she could no longer be in her home even tho my daughter, myself, and Council on Aging maxed ourselves out trying. It has been one year since moving her into our home. This summer her other hip broke, back we went for the surgery/hospital, nursing home/rehab, her Alzheimer condition advanced compounded by repeated urinary tract infections. Right at this moment I feel I am okay with all of it, the love and caring her soul is full of has been given to me and its priceless. When I get tired and frustrated I will hold onto that but found I have to pray and talk to Our Lord or I am lost. Why would that surprise me? Duh!

Early Alzheimer dementia came on slowly, then it takes a leap and levels at that, then another leap. Mom is in what is called third stage now and I can still talk with her “in the moment” for the tasks of changing, bathroom, dressing, eating, pleasantries. She is chair/bed bound except for feeble trips into the bathroom that will probably be the next to go. One day at a time.

As you need to continue working maybe you could consider daycare for your Mom since she is in the early stages? Try Council on Aging for extra help - I know its hard to get the parents to accept outside help but you have to take a stand that this is the way its going to be!
 
Just looking for suggestions on how to deal with convalescent hospital where my dad is living. He had fluid in his chest. When i told the staff that he didn’t sound good, they told me that he had an x-ray and it showed up clear and so the Dr. didn’t want to give him anything. My voice raised and i told them that he didn’t sound good. The LVN or Rn or Aide went to check my dad with that little thing they put in their ears to listen to the inside of his body. The RN or LVN or Aide said he had fluid. the Nurse Practitioner saw my dad and said they were going to give him steroids and a breathing treatment. That was on a monday afternoon. the RN or LVN said he should feel better by thursday. I don’t know how i can get him (my dad) to the hospital. should i ask them (convalescent facilty) if they could get another x-ray.
 
Just looking for suggestions on how to deal with convalescent hospital where my dad is living. He had fluid in his chest. When i told the staff that he didn’t sound good, they told me that he had an x-ray and it showed up clear and so the Dr. didn’t want to give him anything. My voice raised and i told them that he didn’t sound good. The LVN or Rn or Aide went to check my dad with that little thing they put in their ears to listen to the inside of his body. The RN or LVN or Aide said he had fluid. the Nurse Practitioner saw my dad and said they were going to give him steroids and a breathing treatment. That was on a monday afternoon. the RN or LVN said he should feel better by thursday. I don’t know how i can get him (my dad) to the hospital. should i ask them (convalescent facilty) if they could get another x-ray.
Welcome, housedude.

I see you’re very new here and have chosen to ask your question on the end of a 7-year old thread. One of the rules here on CAF is not to reopen old threads, but rather to start a new one. Your question is rather different from the original topic of the thread anyway so you would have better results with a new thread.

And since I don’t understand the health care system in your country, I cannot help.
 
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