Endometriosis and scared

  • Thread starter Thread starter punisherthunder
  • Start date Start date
Status
Not open for further replies.
P

punisherthunder

Guest
Forgive me if this has been posted before, and yes we already used the search and looked at previous posts…

My wife is diagnosed with having endometriosis. She took BC for years since she was in high school to deal with all her abdominal pain. Last year she came off it and we attempted to have children, but nothing happened. Now her endometriosis has come back and the symptoms are doubled it seems.

Anyone have a way of coping with this? Or anything positive? She is 33…
 
Hi!

Best bet is to have her try to see a doctor/visit a NaPro center listed in the One More Soul directory. If the offices/practitioners are too far away or out-of-insurance-network/prohibitively expensive, I believe the Pope Paul VI Institute can consult over the phone, so she can have some recommendations to insist upon with her own provider.

I’m not certain, but if she’s in any NFP Facebook groups, the women there may have further suggestions for support, especially Catholic-focused options.

A few positive/hopeful stories: 1) my SIL had an outpatient procedure to clear up endometriosis and conceived her first baby just 2.5 months later. 2) Though a different condition, two friends with PCOS also had NaPro treatments and are healthfully pregnant with their first children. 3) I used to work at a publishing house that produced an infertility book for Catholics that addressed such conditions and cited reputable studies that found NaPro treatments were as effective, if not more so in some cases, in resulting in pregnancy than IVF-type stuff. Treatment for reproductive endocrine disorders is possible and conception can be possible!

You two are in my prayers!
 
siena_avila said:
Hi!

Best bet is to have her try to see a doctor/visit a NaPro center listed in the One More Soul directory. If the offices/practitioners are too far away or out-of-insurance-network/prohibitively expensive, I believe the Pope Paul VI Institute can consult over the phone, so she can have some recommendations to insist upon with her own provider.

I’m not certain, but if she’s in any NFP Facebook groups, the women there may have further suggestions for support, especially Catholic-focused options.

A few positive/hopeful stories: 1) my SIL had an outpatient procedure to clear up endometriosis and conceived her first baby just 2.5 months later. 2) Though a different condition, two friends with PCOS also had NaPro treatments and are healthfully pregnant with their first children. 3) I used to work at a publishing house that produced an infertility book for Catholics that addressed such conditions and cited reputable studies that found NaPro treatments were as effective, if not more so in some cases, in resulting in pregnancy than IVF-type stuff. Treatment for reproductive endocrine disorders is possible and conception can be possible!

You two are in my prayers!
Click to expand...
Thank you for the kind reply. This whole thing is throwing her hormonal system out of balance too. We will look into the NaPro treatments. Her Endo is on the smaller scale of things the doctor said, that she doesn’t need surgery per se. However, her fibromyalgia is affected by this and the pain is intense for her. We are just two people without a lot of options and more than a few problems. But we are trying…
 
I’d encourage you to have her join Endometropolis on Facebook. They have good resources there and endometriosis specialists participate in the group. They also have a list of excision specialists who can surgically removed the Endo. It’s the only way to get rid of it for sure. Pills just mask the symptoms, and the ablation surgery most obgyns will do doesn’t always get rid of all of it. Everyone is different, obviously, but I found my surgeon through that group and was able to conceive two months later.
 
Im 34, and have Fibromyalgia and had severe Endometriosis and Adenomyosis (yes it is finally gone for good! :extrahappy:) Ended up having to get a total hysterectomy for it (in addition to three excision surgeries) and now am battling menopausal complications from it. (The joys of being a woman! :rolleyes:) We suffered through almost eight heartbreaking years of infertility and then lost our one and only miracle baby to miscarriage. 😦

So, yeah, I’d say I’ve been in your wife’s shoes. 😉

Is she on these forums? I’d be happy to chat with her if she wants!

BTW your doctor doesn’t know what he’s talking about. Even small patches of first stage Endometriosis can cause excruciating pain and symptoms. And if he has never done a diagnostic laparoscopy on her how can he be sure it’s Endometriosis and not something else instead or in addition to. I would get a new doctor ASAP. And one who specializes in Endometriosis. Most GYN’s aren’t specifically trained in this area.
 
Convert_in_99 said:
Im 34, and have Fibromyalgia and had severe Endometriosis and Adenomyosis (yes it is finally gone for good! :extrahappy:) Ended up having to get a total hysterectomy for it (in addition to three excision surgeries) and now am battling menopausal complications from it. (The joys of being a woman! :rolleyes:) We suffered through almost eight heartbreaking years of infertility and then lost our one and only miracle baby to miscarriage. 😦

So, yeah, I’d say I’ve been in your wife’s shoes. 😉

Is she on these forums? I’d be happy to chat with her if she wants!

BTW your doctor doesn’t know what he’s talking about. Even small patches of first stage Endometriosis can cause excruciating pain and symptoms. And if he has never done a diagnostic laparoscopy on her how can he be sure it’s Endometriosis and not something else instead or in addition to. I would get a new doctor ASAP. And one who specializes in Endometriosis. Most GYN’s aren’t specifically trained in this area.
Click to expand...
She is on at times under my screename, but she is meeting with a new fertility doctor in the morning, so I’m hoping for the best.
 
The diet can help with the pain, but does not help with fertility, I believe. I agree with Convert. My own endometriosis was mild, but prevented me from conceiving. And unless he’s done a diagnostic laparoscopy, he doesn’t know its extent.
 
I feel for your wife! Endometriosis is painful. I was diagnosed with it at the age of 32 and have had issues with infertility. Now at 34, we are still trying with medical assistance. I wish both you and your wife the best and pray that you are able to conceive soon.
 
I just saw an ad on Facebook for something called the Ava. It is a bracelet that looks like a fitbit bracelet. It sells for $199. The ad said that you wear it to bed every night, and it will alert you when you’re having your five most fertile days. I’m guessing that it probably works by taking your temperature when you’re asleep, but I don’t know.

I have no idea whether this thing works or not. If it does, I’ll bet it could be used for avoiding pregnancy, too.

Maybe someone else here is familiar with this device.
 
Status
Not open for further replies.
Back
Top