I am very sorry for your loss, and am glad that the memory of his love helps you keep going.
To answer your original question, my husband and I live as brother and sister. He was injured before our marriage, but when we married I wasn’t Catholic and he was lapsed. So we got married, and adopted two kids.
For awhile we practiced “disabled sex” I guess you’d call it, but then I became a Catholic.
When I finally came to realize that sex without consummation wasn’t okay, I told my husband. He wasn’t happy with it, but we get along okay with kisses, hugs, etc.
I have considered divorce for other reasons, because the road has been rocky at times, but don’t want to deprive my children of a decent father, even if he’s not perfect. I guess I could get a divorce and try finding a perfect husband, but think the odds are slim.
So maybe it is rigid and harsh to not allow us to practice whatever we like, but its the cross that God has given us – mostly me, because like your husband, mine is insensate. Life is so short, and heaven so precious, that if I’m stupid for following the church’s rules, I’ll be stupid for Christ’s sake.
A marriage is valid unless someone challenges it, so while our marriage is not technically valid, I doubt anybody’s going to jump up and challenge it. And I believe God isn’t bound by rules – I believe it’s His will that we ended up married, and have our children.