gene therapy

[angell1]

I’m really conflicted.

I know the church is not necessarily opposed to this if you are using it to cure a disease or a disability.

but it really just makes me uncomfortable. why are the disabled always seen as needing to be “fixed” or “cured?” and how to we know that we’re not affecting nature in some crazy way by playing around with or eliminating certain genes? we may see them as “defective genes”. What if God doesn’t think that way?

would the world really be a better place if the severely disabled are gone? all the blind people, autistic, down syndrome, etC… all treated like broken machines.

it’s a way of seeing the world, it comes a part of us. and it always feel like we’re trying to be eliminated in a way, either this, or abortion or euthanasia. not that they’re morally equivalent but the mentality is similar, something is wrong with you and you should be like everyone else or else not exist at all

and no one understands that I will not undergo gene therapy just to see. I guess there is no compassion if you do not accept a treatment. I hav eno idea what would happen with this procedure, what if something else happens, what if it changes me somehow. just seeing would change me enough as it is. And I trust god with his plan for my life. Do I really need to be different just because others want me to?

what do you guys think, is it wrong that I wouldn’t want to go through with something like this?

 

[pianistclare]

First of all, no one who loves you thinks you are flawed. Most especially God. And if they DID, that would be THEIR problem. We meet people where they are at.
You need not explain yourself and your personal life to anyone.

I know people feel free to speak to you like you are some kind of illiterate child because of your blindness, but I think you should develop a thicker skin.
Perhaps with humor, you can say "oh gee…I’ll take that under consideration, and then LAUGH.
Eventually rude people get the hint that not every single comment or opinion is actually helpful or wanted.

 

[GEddie]

Genetic treatments go into soma, or body cells. The reproductive genes are unchanged.

Certain abilities are our birthright as human beings; such as movement, sight, smell, etc. A human body lacking one or more of these abilities **is **in a sense, broken, and fixing that breakage is an act of mercy, provided it can be done without sin.

ICXC NIKA

 

[angell1]

Genetic treatments go into soma, or body cells. The reproductive genes are unchanged.

Certain abilities are our birthright as human beings; such as movement, sight, smell, etc. A human body lacking one or more of these abilities **is **in a sense, broken, and fixing that breakage is an act of mercy, provided it can be done without sin.

ICXC NIKA

I don’t have a problem with my disability, I have a problem of how I get treated because of it.

if others want to be “fixed”, fine, but I don’t, just because people think I should be different.

 

[angell1]

First of all, no one who loves you thinks you are flawed. Most especially God. And if they DID, that would be THEIR problem. We meet people where they are at.
You need not explain yourself and your personal life to anyone.

I know people feel free to speak to you like you are some kind of illiterate child because of your blindness, but I think you should develop a thicker skin.
Perhaps with humor, you can say "oh gee…I’ll take that under consideration, and then LAUGH.
Eventually rude people get the hint that not every single comment or opinion is actually helpful or wanted.

I wish that were true, even my friends and family think it’s crazy to not want to be cured. there’s a huge difference between having no other choice about your condition and refusing something that everyone else thiks you absolutely should accept.

then what? if I need help with something, it’ll be seen as bringing it on myself because I didn’t want to make my life “better”

I recently read an article about a potential cure for down syndrome in catholic exchange, the author was saying that women would stop aborting their babies if they knew that a cure was available. but how is that a different mindset? that’s still not accepting anyone, it’s just saying, don’t have an abortion because we’ll make this problem go away.

I try to have a thick skin, but some days, I am just at my wits end.

and I absolutely do not want to fulfill peopls’ predictions that I will just collect government funding for the rest of my life and sit at my home becase I shouldn’t do anything challenging and have an easy life

 

[pianistclare]

I wish that were true, even my friends and family think it’s crazy to not want to be cured. there’s a huge difference between having no other choice about your condition and refusing something that everyone else thiks you absolutely should accept.

then what? if I need help with something, it’ll be seen as bringing it on myself because I didn’t want to make my life “better”

I recently read an article about a potential cure for down syndrome in catholic exchange, the author was saying that women would stop aborting their babies if they knew that a cure was available. but how is that a different mindset? that’s still not accepting anyone, it’s just saying, don’t have an abortion because we’ll make this problem go away.

I try to have a thick skin, but some days, I am just at my wits end.

and I absolutely do not want to fulfill peopls’ predictions that I will just collect government funding for the rest of my life and sit at my home becase I shouldn’t do anything challenging and have an easy life

You need to run in kinder circles. Those people sound really unkind.

 

[edwest2]

I’m really conflicted.

I know the church is not necessarily opposed to this if you are using it to cure a disease or a disability.

but it really just makes me uncomfortable. why are the disabled always seen as needing to be “fixed” or “cured?” and how to we know that we’re not affecting nature in some crazy way by playing around with or eliminating certain genes? we may see them as “defective genes”. What if God doesn’t think that way?

would the world really be a better place if the severely disabled are gone? all the blind people, autistic, down syndrome, etC… all treated like broken machines.

it’s a way of seeing the world, it comes a part of us. and it always feel like we’re trying to be eliminated in a way, either this, or abortion or euthanasia. not that they’re morally equivalent but the mentality is similar, something is wrong with you and you should be like everyone else or else not exist at all

and no one understands that I will not undergo gene therapy just to see. I guess there is no compassion if you do not accept a treatment. I hav eno idea what would happen with this procedure, what if something else happens, what if it changes me somehow. just seeing would change me enough as it is. And I trust god with his plan for my life. Do I really need to be different just because others want me to?

what do you guys think, is it wrong that I wouldn’t want to go through with something like this?

No one has to go through any treatment they don’t want. I study scientific advancements almost daily. There are people who want to walk again, to see again, to hear again, and people with missing limbs that want a prosthetic that allows them to feel close to normal touch and hot and cold. A lot of scientists are working now to make this happen. If you don’t want it, you can say no.

Gene therapy is more complex but it involves a wide number of problems. It turns out that certain genetic switches are activated by some known, and mostly unknown, factors. The human genome is very complex but experiments with mice, for example, are showing that incorrect function can be restored by resetting certain genetic switches and turning off defective ones. If you don’t want this, you don’t have to get it, but most people want it.

Ed