Zenith, I get what you’re saying…to my own personal fears re: natural disaters, having children, etc., you’re comparing being on methadone to any other sickness/condition that requires constant medication. I totally get the point you’re making. The differences for me, though, are this:
a.) Methadone is expensive. Unlike most other conditions, insurance can’t cover it. At least not for the vast majority of methadone patients and almost all (if not all) clinic patients. My new clinic here in KC actually piloted a program where they were accepting Medicaid. I am on Medicaid because of my baby, so I signed up. Apparently our clinic was the only one in the country that was doing this successfully, and they had to fight for the right to do it. Unfortunately though, a couple weeks after I was approved the program was dismantled. Nobody knows exactly what happened…it happened at the corporate level, with the company that owns our clinic. All we knew was that we were SOL and it was back to nearly $300/month for ALL PATIENTS. My own family is currently on welfare and foodstamps…if it weren’t for the clinic fees, we’d probably be able to go off welfare and we might even be able to afford a car.
b.) most other conditions, such as, say, diabetes…are something that the patient can control and make better, but ultimately can’t cure themselves of. I do believe that addiction is a disease and all that, and I’m not sure that I can cure myself of anything at this point…but I DO know that I have a choice to stay on methadone and deal with the consequences or get off methadone and deal with *those *consequences. That’s where I am now. I also know, from personal experience, that going to the ER in a semi-emergency type situation to get your methadone is not the same as a diabetic or epilectic going to the ER forthe same reason. You will not be treated the same, unfortunately. Depending on the doctor you get, you might not get treated at all.

The stigma is real, and it sucks.
People like you and me…I do think we definitely help matters. We only go once or twice a month so obviously we’re not using illicit drugs. We have jobs and/or families. Nobody would be able to pick us out of a crowd and say, “there, that’s a junkie!” But again…unfortunately that stigma still exists.
Another example of the stigma and how it can hurt people: I think that was a big part of the reason why the NICU kept my daughter for month after she was born. They didn’t wait the normal 3-5 days to see if she would present symptoms. They didn’t wait at all, they planned her medications before she was born and then medicated her when she was 12 hours old. She presented no symptoms. But once she was medicated, well then we had to wait for her to be weaned off the meds that THEY gave her…not the methadone dependecy she was possibly born with. Even when they first started her on the meds, on tiny amounts to “see where she’s at”, she presented ZERO withdrawal symptoms. They tested her blood and she didn’t even show up positive for methadone, even though I was taking a dose of up to 85 mgs. daily for the entire pregnancy. The entire time she was in the NICU, as they tapered her from their meds, she didn’t show even the slightest hint of NAS. It was insane. I believe that in her case, the stigma was the culprit again. The staff (both in L&D and in the NICU) wasn’t familiar with methadone babies and totally overreacted, and then over-medicated her.
c.) I’m not sure yet if I believe in the endorphin deficiency argument. I have read about it, but I’ve also read things that discredit it, so…

Not sure what to think. I’m not a doctor.
I do know that after all these years, methadone makes me feel “normal”…like I can face the day, face life. Last week actually I got up early with the baby, fed her, went and made coffee, got online to check on some forums, paid some bills…And after a few hours, I just felt tired in my bones. I felt overwhelmed by my short little to-do list. I felt overwhelmed by my baby. I didn’t know what to do first, everything got kind of confused in my head. I felt overwhelmed, dull and tired. Was starting to get depressed and achey, too. Then I realized…I ran to the bathroom and counted my bottles and yep-- I had forgotten to take my methadone! Scared me a little, because here I am trying to taper and I got another reminder of how much I need this medicine to function.