As some of you know, from having read other threads about my family, my BIL’s wife passed away nine years ago this past August of Primary Pulmonary Hypertension (PPH), a disease which is always fatal and for which there is no cure. She left behind three small children. Well, those small children are now teenagers… my niece, her oldest, will be 17 in a few short weeks. On the advice of their pediatrician, they went to have tests run to determine if they carry this gene which either will develop into the disease or at least make them a carrier. My youngest nephew will not take the more invasive test till he is older. My 14-year-old nephew got a clean bill of health (Thank You, Lord!)… but my niece does have the gene, with a 20% chance of it developing into the disease itself.
Naturally, we are doing our best to focus on the 80% chance that the disease will NOT develop, but we are devastated nonetheless. This disease is cruel and painful… one literally suffocates to death if the heart does not fail first from lack of oxygen. My niece, like her mother, is a strong young woman… she told me that she prayed that if any of them were to have the gene, that she’d rather she had it than her brothers.
So now I am asking my CAF family to pray that this disease end here…that she remains strong and healthy, that she never lets that 20% chance stand in her way of fully living the life God wants for her. Her name is Lillian. Thank you all.
Naturally, we are doing our best to focus on the 80% chance that the disease will NOT develop, but we are devastated nonetheless. This disease is cruel and painful… one literally suffocates to death if the heart does not fail first from lack of oxygen. My niece, like her mother, is a strong young woman… she told me that she prayed that if any of them were to have the gene, that she’d rather she had it than her brothers.
So now I am asking my CAF family to pray that this disease end here…that she remains strong and healthy, that she never lets that 20% chance stand in her way of fully living the life God wants for her. Her name is Lillian. Thank you all.

