J
Julee
Guest
My son, who just turned thirteen, has severe cerebral palsy and is nonverbal. He goes to Mass with my husband and I every Sunday. Since we can’t leave him in his wheelchair by himself (he also has a seizure disorder), we take him up to communion with us. Occasionally, when we have a visiting priest, he’ll ask if my son can receive communion and when I shake my head no, he’ll bless him. At those times, I’ve wondered if it would be possible for him to one day receive the Eucharist, but it’s not something I’ve ever looked into or pursued. Spiritually, I agree with something one of the sisters in my parish told me, and that is, he’s spiritually way ahead of most of us because he’s been baptized and will never commit a sin. Still, there are those times, when I’ve wondered if in his heart, it would be a joy to him to receive the Eucharist. He’s usually very calm and happy during Mass and I can’t help but wonder if he feels His presence. I hope so. 
In regards to cognitive ability—I want to say that determining cognitive ability in a child with profound disabilities is very difficult. My son’s fine motor skills are nonexistent and his gross motor skills are extremely limited and inconsistent. As such, finding a means of communication for him has proven elusive even though everyone who works with him feel he’s “in there” and his movements on a good day are purposeful. As his mom, I know he understands so much more than I could ever prove. Perhaps this is the case with this family. I in no way fault or criticize the priest, but I can sympathize with the family. I’ve been in situations where people, who don’t know my son on a day to day basis (including trained professionals), have written him off as having little cognition and let me tell you, it hurts. Hurt or not, though, I’m sorry this was brought to the attention of the media.
In regards to cognitive ability—I want to say that determining cognitive ability in a child with profound disabilities is very difficult. My son’s fine motor skills are nonexistent and his gross motor skills are extremely limited and inconsistent. As such, finding a means of communication for him has proven elusive even though everyone who works with him feel he’s “in there” and his movements on a good day are purposeful. As his mom, I know he understands so much more than I could ever prove. Perhaps this is the case with this family. I in no way fault or criticize the priest, but I can sympathize with the family. I’ve been in situations where people, who don’t know my son on a day to day basis (including trained professionals), have written him off as having little cognition and let me tell you, it hurts. Hurt or not, though, I’m sorry this was brought to the attention of the media.