C
Clarissa51
Guest
Becky (related to my sister-in-law) will be turning sixteen in June. She had been diagnosed with Potts and has not been able to go to school all year. She was all A student. She played the flute and took dance lessons-ballet. Now she is at home most of the time and has a tutor two hours a day for four days a week. She is too tired to do the usual four hours a day, twice a week.
While diagnosed, no one has been able to arrive at a treatment which works although she has a GP, a pediatric cardiologist, a pulmanologist and some guy who takes her blood and said, "I guess that’s the way she is,"when they discovered her billy ruben is up, her platelets are down, and some of her cells are exploding (a syndrome called Evans). There is one doctor in Ohio who specializes in Potts and there is a study going on at the Mayo Clinic.
Her GP is somewhat frustrated and is now sending her to Boston Children’s. Please pray that someone will come up with a treatment or some kind of help. It’s sad to see her so sad.
While diagnosed, no one has been able to arrive at a treatment which works although she has a GP, a pediatric cardiologist, a pulmanologist and some guy who takes her blood and said, "I guess that’s the way she is,"when they discovered her billy ruben is up, her platelets are down, and some of her cells are exploding (a syndrome called Evans). There is one doctor in Ohio who specializes in Potts and there is a study going on at the Mayo Clinic.
Her GP is somewhat frustrated and is now sending her to Boston Children’s. Please pray that someone will come up with a treatment or some kind of help. It’s sad to see her so sad.