D
dranzal
Guest
I have a friend with three boys and one on the way. Her second boy has Dravet Syndrome, " a rare disease (only about 1 in 20,000 births) whose primary feature is intractable epilepsy."
This she and her family live with this every day. It seems that they had a particularly rough night with several seizures.
I hope she won’t mind my sharing her FB post from 2 am:
God, I understand the need/benefit of suffering, but please, please stop my baby’s suffering. Just watched Kael go stiff, shake, like he’s being electrocuted…
And an hour ago she posts that he just had seizure #7, each of this with mini seizures in between.
I know what it is to lose a child, but I have not had to watch my own suffer and suffer.
Please pray for Katherine, her family, and especially her little Kael.
Here is a little about them on her blog: kaelsstory.blogspot.com/2010_01_01_archive.html
Thank you.
This she and her family live with this every day. It seems that they had a particularly rough night with several seizures.
I hope she won’t mind my sharing her FB post from 2 am:
God, I understand the need/benefit of suffering, but please, please stop my baby’s suffering. Just watched Kael go stiff, shake, like he’s being electrocuted…
And an hour ago she posts that he just had seizure #7, each of this with mini seizures in between.
I know what it is to lose a child, but I have not had to watch my own suffer and suffer.
Please pray for Katherine, her family, and especially her little Kael.
Here is a little about them on her blog: kaelsstory.blogspot.com/2010_01_01_archive.html
Thank you.