there is a** lot** of preperation you can do for a special needs child. For some birth deffects, having the right team of doctors there for the birth can mean the difference between life and death, or mild disability and profound disability.
With DS, being prepared means being psychologically prepared as well as physically prepared. Some kids w/ DS have serious heart problems. Knowing what that actually means and being prepared to deal with it is very important to many people.
Babies w/ DS need very early professional intervention. Wouldn’t it be so much easier on the family to know this and to have researched the options, chosen the specialists you’ll use, etc?
People want to know they’re have baby before it’s born. They don’t want to be surprised by an infant in their lives that they didn’t expect. They want to read the baby books, have the baby’s room prepared, have babysitters lined up (in families in which both parents work). They want to learn all they can before the baby arrives. They want to have as much set up before the baby comes, because they know the arrival will be life-altering. Everything they can learn and do before the baby is born, is that much they don’t have to “under the gun”.
Be prepared. It’s not just for Boy Scouts.
And how much more important is that preperation for the parents of a child with a serious problem? How much more do they need to know, to prepare for?
Do you think finding the right specialist is easy? Are you prepared to so a** lot **of study, interview specialists, meet w/ parents of children like yours, and set up therapies (just to name a few of the things you’ll need to do) within hours of giving birht?
That’s hard enough for the father who is in psychological shock over the situation. I would imagine it would be much more difficult for the mother when she’s sill recovering physically.
As the parent of a 21-yr-old, I can tell you that you will never be 100% prepared for any stage of your child’s life. But the more knowledge you have, the better off you and your child will be.
This isn’t a selfish stance. How would your child be hurt by having a very prepared set of parents?
I’m not suggesting that you should have the test. Just sharing the perspective of a person who has had a child, and who has seen others deal with problems at birth.
We had the first test, a blood test, which came out normal. It’s impossible to say what we would have done if it had come up suspicious. I do know that now that we’re older and have seen more, we would have the 2nd test. But then we’re older and are at higher risk for problems.
I do know, also, that we worried about problems w/ the baby, even after having a normal first test–there are so many things that can go wrong. Whenever we saw a child with problems, we thought of our own developing baby.
We learned that parental worry starts before birth. I’m learning that it is still pretty strong 21 tears later.