"Selective termination:" Which child is good enough?

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dennisknapp

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My lovely wife posted this on her blog the other day. It was so good I thought I would share it with you.

A Troubling Issue: Part I

I typically don’t like to use this time and space for airing my more controversial personal beliefs, but this one has been bugging me for a while now, and I feel it needs to be documented here for our future child to read and consider…

The other day, I had a disturbing email conversation with a friend of mine who is struggling with infertility – or perhaps just a misalignment with God’s timing and her & her husband’s desire to get pregnant. Although they don’t believe in artificial insemination, fertility drugs or test tube treatments, they are taking the genetic testing route. After a discussion as to the reasons why a couple might choose that option, she shared with me that they believe in a practice, now called “selective termination.” In short, it means if a child has a chance of being imperfect with Down’s syndrome or other oddly-named syndromes and/or abnormalities, the pregnancy is “eliminated” – call it what it is: abortion. The real key in that definition, too, is the noun: CHILD. The practice “eliminates” a life, “terminates” a child.

Now, no offense to my friend and her husband, but I was and still am fascinated by society’s belief that we have the authority to pick and choose, and with modern DNA technology, “engineer,” perfect babies. I cannot stand alone in noticing the obvious absurdity in this thinking! There is not one educated, intelligent argument that supports the practice, yet people continue to do it every day. Heck, we customize our cars, our burgers, our clothes, our homes – why not throw our kids in the mix, too. The selfishness behind it is painfully and deeply saddening, yet considering America’s pitiful values system of self-centeredness, materialism and superficiality, not surprising.

It’s interesting – a current hot topic for Special Olympics is how the organization is going to be affected in future years because the Down’s Syndrome and special needs population is declining due to this phenomenon. Think about that for a minute. And, check out this Christianity Today article that talks about a “perfect society,” one without disabled and special needs members: http://www.christianitytoday.com/ct/2005/007/2.49.html

Here are some hypotheticals to think about… My mother was 44 when I was born. Her doctors told her that because of her age, I would either have Down’s Syndrome or be mongoloid (whatever that means). She spent the rest of that day weeping and miserable. But, my parents had me anyhow, and while the jury is still out some days on how “normal” I turned out to be, I’d argue I’m pretty A-OK. Could they have predicted my ankle defect? Probably not. It makes me imperfect, but, has it come between my leading a nearly 100% normal life? Absolutely not. I was a perfect candidate for this “selective termination” gig, but thank GOD my parents were wise enough to decide otherwise. Imagine the joy Dennis and SO many others would be denied in this world without my existence… (Note the sarcastic humor there.)

Then take Dennis… He was born 100%, A-OK. Not so much as a birthmark to give a sign of imperfection. Flash forward ten years, and he had to wear an eye patch for an eye issue, and was put in special education classes (although he was neither officially tested nor qualified to be there). Beam another fifteen years, and he began experiencing his crippling potassium condition, which he still struggles with daily. Could ANY of that be predicted in utero? Absolutely not. If his parents, or other parents like his, had a crystal ball and knew that’s what he would have to deal with later in life, should they have considered “eliminating” their pregnancy? I am grateful every day of my life that they didn’t.

To be continued…
 
Troubling issue: Part II

And, what about the child, God forbid, who is born perfectly, but sometime later in their life undergoes a horrible accident that permanently disables or deforms them? Christopher Reeves, for example. “That kid” we all went to high school with who we heard through the grapevine drove his truck off a cliff and ended up a paraplegic. Terry Schiavo. Or great people who lose their “perfection” as adults? Teddy Roosevelt. Beethoven. Just about all of our grandparents and ancestors who suffered and/or died from cancer, heart disease and who knows what else. Not to mention the issue of free will… What about “perfect” children who grow up to be people like Hitler, Bin Laden, Manson or Kervorkian, to name a few. That’s why parenthood is such a serious endeavor. We don’t know what we’re getting into. We just have to spend our lives hoping and praying for the best.

You see, just like abortion, this concept of “selective termination” describes ONE decision parents make that affects generations of history. It interferes with God’s master plan. And ultimately, deceives unknowing parents into believing that they are actually in control of their children’s destinies. I think about pregnancy – the ten months before a baby is born – and compare that to the LIFETIME of years ahead in every child’s life. In short, if they aren’t “perfect” in utero, chances are sometime eventually they will cross the path of imperfection. Give me one example of the “perfect” human being without any health flaws, quirks, predispositions or issues and I will gladly eat the crow of my words. I confidently exhort, there isn’t one out there – and here’s the kicker: GOD DESIGNED IT THAT WAY!

Throughout this pregnancy, as I worked with my Special Olympics athletes, I constantly hypothesized about “what if” our little one was born with some of the disabilities these people struggle with. My most poignant example is one of our best athletes who was 100% healthy before he was born. Somehow in the birthing process, there were complications, he came out blue and suffered permanent brain damage. He is almost unnoticeably “special” until you really get to talk with him, but is an amazing 44-year-old man (a Special Olympics World Games medallist, by the way!) with an incredible singing voice, full-time job and kindest heart around. I look at the sparkle in all of our athlete’s eyes. The joy they bring to my and so many other people’s lives clearly demonstrates how intentional their lives really are. How important of a lesson they can share with each one of us. How they are put on earth for a clear reason – a reason of which we have NO business getting in the way.

Do I WANT a special needs child? Of course not. But, if Baby Knapp were born as one, what would I do? LOVE him or her with all of my heart. Does it scare the heck out of me? Of course. How hard Dennis and my lives would become, yes. How expensive our medical expenses would become, yes. How strong as parents of a special needs child we would have to become, yes. But, God NEVER gives us more than He knows we can handle, and life is not worth living without a few serious challenges.

And, I don’t want to hear about how technology is more advanced now, how we can predict things more accurately, blah, blah, blah. Technology and medicine are still imperfect, designed by imperfect humans. Mistakes are made all the time, as are miracles (dare I suggest divine intervention!?). I don’t care how advanced our society ever gets, we will never be God, and we need to stop pretending that we have similar or equal control over our circumstances as He does.

To be continued…
 
Troubling issue: Part III

Frankly, it is neither my preference nor my personality to interfere in other’s people’s live decisions, but we as a society must detect which decisions are personal and which are global. Do you know what YOUR friends believe in? What decisions they might be making with their future children? What decisions they might choose to make should they learn they might have a hard road ahead of them? What opportunities might arise for you to save – or change – a whole slew of lives? It IS our business to know this, educate them and try to get them to see how behemoth of a decision they are making when it comes to toying with the fragility of life. Even if we can’t change their minds or choices, at the very least when we arrive in heaven, God will know that we gave it our best effort and tried to save a life of a child made in His image – as imperfect as that may seem to man.

Peace
 
Your wife is a wonderful lady with her head on the right way round.

“Terminating” an “imperfect child” or a "child with a chance of being imperfect? Which of us is, for heaven’s sake? Everyone I know suffers from bad knees, weak ankles, back problems, carpal tunnel, chronic back pain, depression, PMS, and/or hysteria! Maybe we should all be terminated.

Everybody is imperfect! I’ll bet the guy who came up with that statement uses a cane!
 
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The_Angelus:
Your wife is a wonderful lady with her head on the right way round.

“Terminating” an “imperfect child” or a "child with a chance of being imperfect? Which of us is, for heaven’s sake? Everyone I know suffers from bad knees, weak ankles, back problems, carpal tunnel, chronic back pain, depression, PMS, and/or hysteria! Maybe we should all be terminated.

Everybody is imperfect! I’ll bet the guy who came up with that statement uses a cane!
Thank you! And thanks for your post!

Peace
 
My wife and I are a little older for first time parents (she 36 and me 35 at the time she became pregnent) and she had previously had a miscarriage. So the doctor really forced genetic counseling on us. I said no. My wife said no, but the doctor was in CYA mode I guess in case we had a “problem” child.

To make them happy we went to the session. What annoyed me was that they went ahead and scheduled us for an amnio even though we said no. After the counseling session was over, a nurse started going over what he had to do for the amnio session. I almost lost it.

They made us sign a release saying we refused the amnio and accepted that me could have a genetically deformed child.

With baby number 2, new doctor in a nbew city did not require this of us.
 
My late sister was 39 when she gave birth to a perfect baby girl. My aunt was forty two when she gave birth to my perfect cousin Neroli.

For some unknown reason the powers that be seem to think that if you are over 35 and having a baby that it will be deformed and therefore it is unwanted. Do they realise how primitive that kind of thinking happens to be? Yes, PRIMITIVE.

I want to remind people here that the Spartans believed in having perfect children. If any child was born with an imperfection it was left to the elements to simply die. That was not very nice, but it is the attitude of a primitive society.

We are supposed to be technologically advanced, yet society continues with these primitive ideas that having a child that is imperfect makes the person somehow less perfect.

When I was growing up there was a Downs Syndrome child who lived with her mother a few houses away from us. What I learned from knowing Patti has impacted me for the remainder of my life. She had trouble talking. She used to stutter and was slow getting out her words. She had other health problems. Yet, to know Patti was to love her entirely. She was like a sister to us and it was a sad day when Patti and her mother moved away.

I can think of no reason why these children should be treated differently. I can think of no reason why they should be considered so unlovable that people do not want them to be born.

Sure there are other diseases, such as Spina Bifida that cause concern. However, if all Spina Bifida children were eliminated then we would never know the wonderful work of Stephen Hawking.

We cannot determine what makes quality of life. People seem to think that they should never feel pain. However, God never intended that we would live in a world without pain. That kind of attitude is pure selfishness.

The amniocentesis test should be made unavailable unless it is strictly necessary. Even then the doctors and nurses have no right to counsel couples in such a way that they are told to “eliminate” a child that might not be perfect.

As soon as you allow abortion on demand, all of these things have followed. It is just so sinful.

MaggieOH
 
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The_Angelus:
Your wife is a wonderful lady with her head on the right way round.

“Terminating” an “imperfect child” or a "child with a chance of being imperfect? Which of us is, for heaven’s sake? Everyone I know suffers from bad knees, weak ankles, back problems, carpal tunnel, chronic back pain, depression, PMS, and/or hysteria! Maybe we should all be terminated.

Everybody is imperfect! I’ll bet the guy who came up with that statement uses a cane!
Angelus:

I use 2 of them…

I’m sure the Insurance Co. would love to terminate me… Let’s just say that keeping me mobile has become an expensive proposition.

Blessed are they who resist the Temptations of this Evil Age, Michael
 
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dennisknapp:
Troubling issue: Part III

Frankly, it is neither my preference nor my personality to interfere in other’s people’s live decisions, but we as a society must detect which decisions are personal and which are global. Do you know what YOUR friends believe in? What decisions they might be making with their future children? What decisions they might choose to make should they learn they might have a hard road ahead of them? What opportunities might arise for you to save – or change – a whole slew of lives? It IS our business to know this, educate them and try to get them to see how behemoth of a decision they are making when it comes to toying with the fragility of life. Even if we can’t change their minds or choices, at the very least when we arrive in heaven, God will know that we gave it our best effort and tried to save a life of a child made in His image – as imperfect as that may seem to man.

Peace
Dennis:

Regarding this and the previous 2 posts in the series, very well said.

Hopefully, someone read them who needed to hear the message.

May the Lord bless you and your words, Michael
 
You and your wife deserve an award for that article. You ought to have it published in a Catholic Dioscesan Newspaper or something.
My mother was almost 40 when I was born, I was the youngest of nine, and I turned out “perfect.” ( 😛 (just don’t talk to any of my brothers and sisters, o.k.??)
Seriously though, even if I weren’t, they would have loved me, kept me, raised me and acted as if I were. No way would they have let anyone tell them that I didn’t need to be here, they knew that God has a purpose for everyone. We may not know it in this life, but He sure does.
:blessyou:
 
Amcalabrese, Angelus, Dennis Maggie, Momofone and anyone else online:

Some 17 to 14 years ago, while I was in the middle of making a mess of my life, I had one good thing that I did that I enjoyed. I knew that I was doing good doing what has been and still is my favorite job, which was teaching Developmentally Disabled Adults how to drive their wheelchairs and get around in the community.

The people I was teaching had various levels of disability (some could walk short distances between parallel bars while others needed help doing everything) and various levels of mental retardation (from mildly retarded to profoundly retarded).

I didn’t make much money from this job, but you don’t keep working jobs like that for the money. But, I loved it far more than I hated it, esp. when one of the clients learned how to do something they hadn’t done before, or had fun doing something that the people in charge wouldn’t allow them to do until I cam along.

I still remember when one of the clients couldn’t control his wheelchair, and no one could figure out how to do it. One week, I took advantage of the time he spent out of the chair in physicial therapy class and learned how to drive his chair, then spent the next 2 months teaching him what I learned until he could drive around the program (he needed an equalizing device for the community - MediCal didn’t pay for those).

I’m not going to go into detail about why I no longer do the job - Suffice to say that, thanks to various physical conditions, I haven’t been able to do it for some 11 years.

One of the Jewish Sages, the Vishna Goyan, used to stand whenever a child or adult with Down’s Syndrome walked into the room. He claimed that only a “Great Soul” would take on such a challenge from G-d.

Genetic Counseling, “Eugenics” and the filtering out of the “Imperfect” will mean that we will lose the benefit of these “Great Souls” and that people like me will lose having the best jobs we could ever have.

But what’s that against the need to make sacrafice to the “Great gods of Convenience and Perfection”?

How many more children will we Sacrife to these substitutes for MOLECH before we get that God despises Child Sacrifices and that this is an Abomination which seperates us and our society from His Protection and Care??

Blessed are they who act to save God’s Little Ones, Michael
 
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amcalabrese:
My wife and I are a little older for first time parents (she 36 and me 35 at the time she became pregnent) and she had previously had a miscarriage. So the doctor really forced genetic counseling on us. I said no. My wife said no, but the doctor was in CYA mode I guess in case we had a “problem” child.

To make them happy we went to the session. What annoyed me was that they went ahead and scheduled us for an amnio even though we said no. After the counseling session was over, a nurse started going over what he had to do for the amnio session. I almost lost it.

They made us sign a release saying we refused the amnio and accepted that me could have a genetically deformed child.

With baby number 2, new doctor in a nbew city did not require this of us.
I am not sure I totally understand why the Dr. “forced” genetic testing on you.

I know that when I was pregnant in my late 30s with my last child the Dr. recommended an amnio test. I refused because my logic and feelings were that no matter what I would never have an abortion so why have one. Someone did point out to me that it might be good to know if the child will have problems at birth so that I and the Dr.s can be prepared to treat my child immediately. This, of course, made more sense to me. Although, I still did decline the amnio because of the risk of infection and the possiblity that I could go into premature labor.

Maybe your Dr. just wanted you to be prepared for any complications before hand.
 
BTW–This thread is making me think of a wonderful song by Martina McBride called “God’s Will”. Beautiful, inspiring song. 👍
 
One of the Jewish Sages, the Vishna Goyan, used to stand whenever a child or adult with Down’s Syndrome walked into the room. He claimed that only a “Great Soul” would take on such a challenge from G-d.
I want to learn to see things this way. This is beautiful. As is the OP!! :clapping: :bowdown2:
 
My wife’s friend, or former friend as she has ended the friendship over this issue, has sent a reply.

Here is what she sent my wife via email:

"I am sending this email with a terribly heavy heart. I was so happy to hear that your pregnancy is going well and I wish you and your new family the best in years to come. As I occasionally do, I went to your pregnancy blog and was astonished to find that you had written about the intensely personal conversations that you and I had regarding my struggles with infertility. I do appreciate the fact that you did not inappropriately include our names. However, I am deeply saddened, disappointed, and angered that you had such inflammatory and hurtful things to say regarding our personal beliefs and I refuse to justify our beliefs to you any further in this email as it would be futile. I understand and acknowledge your beliefs, however different than my own, and believe that I have been nothing but respectful and supportive of you. I would never pass judgment on you, Dennis or you family for being of the Catholic faith or any other faith. On the contrary, I applaud you for finding your way to God and I am pleased that your life is richer in His presence. I am of deep spirituality and although my feelings toward organized forms of religion are admittedly cynical, I have confided in you my thoughts toward religion in general and I found you to be accepting. However, the statements that you left on your blog show that my confidences are open to scrutiny and the trust that I had in our friendship being non-judgmental was gravely mislaid. I felt that your comments showed a deep intolerance for others who do not follow your faith. I found them to be profoundly cruel, insensitive, and alienating.

My husband and I are intelligent and loving and try our hardest every waking moment to be the best human beings possible. We are comfortable with our level of success in this quest and we are confident in our knowledge that our souls will be accepted and warmly received by our God when He is ready to see us. God will judge us according to our conduct, not what others believe our conduct should be.

I want you to know that I forgive you for hurting me and my husband. I cannot, however, continue to carry on with you at this time what I believe to be an unsupportive and harshly judgmental friendship. I will not subject myself to the negativity. I have done nothing to deserve the betrayal. With deep regret, I must say goodbye to you, perhaps to meet again on better terms in the distant future, perhaps not. I wish you nothing but the best. May the love you find in your child’s eyes bring you the happiness your desire."

Peace
 
I wanted to add to your wife’s list of people who could have been “terminated”. A friend of mine whose mother contracted german measles during her pregnancy with him was advised to have an abortion. Because of her Catholic beliefs she declined the advise and went ahead to give birth to a perfectly normal baby boy. My friend is now a doctor of OB GYN. He is a pro-life activist who donates his time and talents to local pregnancy crisis centers. He and his wife have adopted a child from china along with the two children they struggled to have because of fertility problems.
 
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cove:
I am not sure I totally understand why the Dr. “forced” genetic testing on you.
Simple – lawsuits. Some people if they have anything other than a perfect baby will sue. By getting counseling, it protects the doctor. And if you get an amnio and find out the baby is “abnormal” and still do no “terminate the pregnency” you really cannot sue.

Personally, I did not want to know. My feeling is that is the baby had special needs, I would deal with it then.

As for physical (as opposed to genetic) issues, I figured the sonograms would find them, so the doctors would be ready after the baby was born to deal with it then.

Luckily, both my children are perfect (or at least I think so!).

I still mourn though for the baby we lost.
 
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dennisknapp:
My wife’s friend, or former friend as she has ended the friendship over this issue, has sent a reply.

Here is what she sent my wife via email:

"I am sending this email with a terribly heavy heart. I was so happy to hear that your pregnancy is going well and I wish you and your new family the best in years to come. As I occasionally do, I went to your pregnancy blog and was astonished to find that you had written about the intensely personal conversations that you and I had regarding my struggles with infertility. I do appreciate the fact that you did not inappropriately include our names. However, I am deeply saddened, disappointed, and angered that you had such inflammatory and hurtful things to say regarding our personal beliefs and I refuse to justify our beliefs to you any further in this email as it would be futile. I understand and acknowledge your beliefs, however different than my own, and believe that I have been nothing but respectful and supportive of you. I would never pass judgment on you, Dennis or you family for being of the Catholic faith or any other faith. On the contrary, I applaud you for finding your way to God and I am pleased that your life is richer in His presence. I am of deep spirituality and although my feelings toward organized forms of religion are admittedly cynical, I have confided in you my thoughts toward religion in general and I found you to be accepting. However, the statements that you left on your blog show that my confidences are open to scrutiny and the trust that I had in our friendship being non-judgmental was gravely mislaid. I felt that your comments showed a deep intolerance for others who do not follow your faith. I found them to be profoundly cruel, insensitive, and alienating.

My husband and I are intelligent and loving and try our hardest every waking moment to be the best human beings possible. We are comfortable with our level of success in this quest and we are confident in our knowledge that our souls will be accepted and warmly received by our God when He is ready to see us. God will judge us according to our conduct, not what others believe our conduct should be.

I want you to know that I forgive you for hurting me and my husband. I cannot, however, continue to carry on with you at this time what I believe to be an unsupportive and harshly judgmental friendship. I will not subject myself to the negativity. I have done nothing to deserve the betrayal. With deep regret, I must say goodbye to you, perhaps to meet again on better terms in the distant future, perhaps not. I wish you nothing but the best. May the love you find in your child’s eyes bring you the happiness your desire."

Peace
While I’m sorry to hear your wife has lost a friend over this, I do believe she is in the right and her friend has been caught up too much in this relativistic society that if you think you’re doing right, you’re doing right. God bless your wife and I hope her friend comes to see the truth of this issue.
 
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