I am sympathetic to the mother and to the original poster for this distress. It is difficult to second guess doctors, but sometimes that is just what we are called to do.
My niece was born with only half of a brain. The doctors told her mother that she would not live. It was not even an issue of whether or not she would live well, they did not believe she could live. She just finished kindergarten, and is a normal little girl without disabilities. The brain is amazing, and it compensated in some way for the parts that were not there. She favors one side, but what is going on inside her head is otherwise completely unnoticable. It was terrifying time for her mother, but the point of telling the story here is that doctors- however brilliant- cannot always predict what is going to happen. Sometimes babies die and no one knows why. Sometimes they survive the most incredible and impossible medical situations.
I am carrying a baby now- 6 months along- who has been diagnosed with a genetic disorder. In the first ultrasound, they found abnormalities and sent me to a specialist. The specialist looked at the fetal development and told me tha my child did not have a chance and I should abort. He had various potential diagnoses, but the bottom line was that no matter which of these was true, the baby would not survive. That was his professional opinion. We did not consider abortion, and we refused to see that doctor again (because the experience was so difficult for me.) Since then, we have seen a number of doctors. Each has been told that we will not consider termination, and each has respected that and has done the best they can to equip me and my husband with the best medical help.
My baby may not be able to take a breath, her lungs are not properly formed. She may need surgery immediately after birth. She may have heart problems. Her skull is fusing already, which may mean that the brain cannot form properly. In the worst case, she will not survive long after birth. In the most likely case, she will be born with difficulties, and will live with certain abnormalities. In the best case, she will be born perfectly healthy- a miracle. She is my daughter. I have been going to see many doctors. (Two regularly each month in addition to any necessary testing. At 32 weeks, I will begin seeing both my regular docs weekly.) I will get her the best possible care, because she is my daughter. I will hope and pray for her health, knowing that if she is born healthy at this point, it would be a miracle. I do not love her less for her potential difficulties. I would not love my older daughter less, or fight less for her, or hope less for her, if she was in an accident and injured in potentially life-threatening ways. I see it as the same. My daughter, the younger, unborn daughter, is facing severe medical difficulties. It is my job to get her the best care I can, and to hope and pray for her. We don’t give up on our children when we hear bad news. I am not delusional, and I understand that there is a possibility that my daughter will not live long after birth. I am just a mom who loves her daughter and will not give up on her.
I am not sharing to give distress to anyone. I just want to make a few things clear.
- Doctors do not always know. They give their best guess. They are usually very good- but if they do not understand the viewpoint that this unborn child is already viewed as a family member, they may not treat the child as a child. Don’t lose faith in the doctors, just be upfront with your beliefs and demand doctors that will respect them.
- We are the caregivers for our children. They are not ours- they are God’s and only God knows his plan for them. We trust that God knows what he is doing, even when it seems impossible or cruel. God knows us better and loves us more than we can possibly understand.
- Miracles happen. I am not saying expect miracles- but trying to pretend that we know what is going to happen in a given situation is silly.