I am a donor to the International Anti Euthanasia Society and used their Health Care Power of Attorney document to express my wishes, rather than the boilerplate Advance Directives/Living Will offered by my state, which gives hospitals and doctors carte blanche. They don’t know me!
My sister does, though. I feared she might be a little utilitarian in her reasoning, being a farmer, an Episcopalian, and due to some opinions about situations that she has expressed in the past. However, she had HCPOA for my dad and had to make decisions last summer. I gained confidence in her process through that. (She convened the adult family members–me, my SIL and through her my bro on the phone, and we consulted with Hospice, the true dying process experts. Our decision process was thorough, conscientious, by consensus, and we all have peace about it. We made sure it respected my father’s finely tuned Catholic conscience and moral reasoning.)
I do not let ANYONE but my sister legally make any health care decisions for me if I am unable. Period. I suggest you all make the same arrangements, given the changes that are coming.
FOCA + PAS + electronic medical records + gummint health care = disaster that any not totally healthy person should fear and dread
My dad died of complications of advanced Parkinsons disease. He knew he was dying, due to his last words before he totally lost his speech upon entering the hospital the last time, two weeks before his death. It took us longer to figure out what was going on and what to do.
Catholic morality says you do not deny nutrition or hydration–which we heard a lot about during the Terry Schiavo (sp?) case. However, that was not suitable for my dad’s case. Due to the loss of speech/swallowing motor control, he could not take his L-dopa and his loss of motor control accelerated. His throat and stomach were out of control. He got pneumonia from food coming back up into his throat and him aspirating it into his lungs. The doctor wanted to know if we wanted to put in a feeding tube, without offering any opinions or outlooks on either decision. The hospice nurse pointed out that he would be nourished, but his motor control problems were still there, so it would be likely that he would regurgitate and aspirate the tube-fed nourishment anyway, causing greater pain and suffering.
Another point was the hydration–Catholic morality says you don’t deny hydration. However, whenever Dad was hydrated through IV, his lungs would flood and it caused pain and breathing difficulty (even with Lasix). If they didn’t hydrate, he could breathe more comfortably but his potassium levels would go out of whack. There was no perfect solution. The hospice nurse explained that in the dying process, dehydration causes a release of endorphins that makes the dying person feel really good and comfortable. I didn’t know that before. Another bit of evidence of the incredible genius of God’s creation, don’t you think?
In Dad’s case, nutrition and hydration would have been torture and would only delay the imminently inevitable.
The hospice nurse was the only person who would tell us straight out that Dad was dying. After she explained the dying process and the effects of our medical interventions, I concluded, Dad is trying to die and we keep getting in the way.
So I made it clear to my sister, don’t deny nutrition and hydration if I’m Terry Schiavo, but it it is causing me harm and pain, like Dad’s situation, and I’m not asking for food or water, then go ahead and stop it.
I watched my Mom’s final furlong, dying of horrible cancer pain. I couldn’t even touch her–it caused her pain. I’ve had three cancers, and I’m facing the possibility of the fourth…just about a 20% chance, but I’ll find out for sure in June. One of my previous cancers leaves behind an untreatable, low, stable cell count in my bloodstream, so it’s a chronic condition for me, really. I think it’s more likely that I’ll die doing adventure sports…being struck by lightning out sculling or refereeing at a rowing regatta…or hit by a coal truck while out cycling. But if my outdoorsiness and adrenaline junkie sports habits don’t get me, I really feel like it will be the cancer. And I told my sister (HCPOA) that I dread the pain I saw Mom go through.
Don’t tell me Jesus went through it so I should do it too. His torture lasted one day. Mom’s lasted for months. Don’t tell me to suck it up.
I told my sister to make sure I’m getting adequate pain meds to control the pain, even if the unintended secondary side effect is that it’s enough to kill me. So be it. If it’s inhumane to let an animal suffer like that, why do we insist that it’s moral to let a human suffer like that? That’s whack.
I do not want to kill myself, and won’t even if I get more diagnoses of cancer or mets. (Cancer doesn’t kill you, mets does.) I want to live each day to the fullest and cherish the time I have here. If I have confidence that my sister will ensure I’m not tortured in pain lacking the meds I need in the end, I’m cool with that.
And so is the Church, btw. In moral reasoning, it’s primary motives and unintended secondary consequences. Just like it’s OK to give an abortion to a woman who needs it to save her life (such as with an ectopic pregnancy), even if a child is aborted in the process as an unintended secondary side effect. It’s OK to medicate as needed to control pain even if the unintended secondary side effect is enough of a dose to cause death (typically by suppressed respiration).
Yeah, I’ve thought through all this stuff in an incredibly personal way, because I have skin in the game. This isn’t hypothetical for me. And yet it squares with Catholic morality if you know it well enough. It’s a lot more nuanced than most folks realize.
And if I’m wrong, I entrust myself to God’s mercy, because it’s His representatives that helped me work this all out.
