Gluten Free Host at Mass

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Gorgias said:
I’m sorry. It must be a real trial to have celiac disease. I can’t imagine.
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Imagine realizing you can’t even have a stupid can of Campbell’s tomato soup. Or a Slim Jim.

No flaky croissant ever again.

It was an Authur Dent moment.
 
Kindness, hey cheer up. At least you and I still can have a steak. And a glass of wine.
 
Kindnessmatters said:
I am not sure why presumably intelligent people think that the people who don’t care that parishioners have been raped will care that we have a food sensitivity.
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Some listened to those who suggested that pedophilia could be ‘cured’. Others attempted to pretend it wasn’t really happening, or were unwilling to take difficult steps to correct the problem, or were unwilling to expose the Church to scrutiny; these are unacceptable responses.

Do you think that responding to celiac has the same level of disbelief, or fear, or poor judgment?
 
I think that people who told me to “get over it” and refused to help when i went to them in tears over being abused, had PTSD, said that secular therapists only told me to leave the church and asked the church to provide me some help, are useless jerks. These are not individuals I wish to ever see again.
 
The advice is to go back through the same channels. I cannot do it. The idea makes me feel like I ate a loaf of French bread.

I suffered for twenty years to get back to church and specifically communion and I’m tired. Jesus is not asking this of me. Ignorant people are.
 
Why is it unrealistic? It is what you suggest celiac patients should do. Let’s erect special hoops just for the sick people with debilitating, exhausting autoimmune diseases to jump through because “that’s what Jesus would do”.
 
Your genius doctor is totally out of line with the celiac community. No responsible celiac doctor would approve any amount of gluten.
 
Ive a friend with severe Celiac. She has a tiny chalice. Prior to Mass, it is placed on the Altar. At the proper time, before consecration, a tiny amount of wine is poured into that chalice as well as the main Chalice. The mingling only takes place in the large chalice.

She is either first in line or last in line, receives from her own chalice. This is very do-able and is legitimate.
 
TheLittleLady said:
She is either first in line or last in line, receives from her own chalice. This is very do-able and is legitimate.
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Right, but @Kindnessmatters has pointed out that her pastor is unwilling to implement distribution of the Precious Blood in his parish and their bishop is unwilling to force priests to do so. Moreover, she’s unwilling to appeal the issue further up the line.

At this point, given the coronavirus situation, it’s probably a moot point at the present time. Even if there are Masses being celebrated, it would be difficult to say “I’m going to distribute the Precious Blood to this person and that person, but not to anyone else.” The priests would be inundated with requests that they’d be unable to honor.
 
As the USCCB has specific guidelines, these need to be brought to the attention of the priest and the Diocese: (bold mine) Note the Bishops approval is only required for Mustum

http://www.usccb.org/about/divine-w...ines-sacraments-persons-with-disabilities.cfm
  1. Catholics with Celiac Sprue Disease or other conditions that make them gluten intolerant should be given the opportunity to receive a small fragment of a regular host, and made aware of the options to receive a low-gluten host or to receive under the form of wine alone. In the event of intolerance to gluten and wine, mustum may also be an option, with the approval of the local ordinary.34 Clergy and extraordinary ministers of Holy Communion need to be aware of the possibility of cross-contamination and related issues in order to plan for the safe administration of the sacred species to Catholics with gluten intolerance. For example, the chalice given to a person with gluten intolerance should not contain a particle of the host, and low-gluten altar breads should never be intermingled with regular altar breads. As people may feel self-conscious at the prospect of needing special arrangements for the reception of Holy Communion, pastoral sensitivity in this area is particularly important.
Further reading:

https://ncpd.org/search/node/gluten
 
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Yeah, but to be honest with you, Celiacs regularly deal with skepticism and ignorance even in the medical and secular fields. To be fair, I am not surprised Catholic clergy are mostly unaware of the dangers posed by gluten to us. I do have sympathy for Kindness and other Catholics with CD who not only have to struggle to avoid gluten in their everyday lives but also have to have the same fight in their religious practice.

I understand clergy are overwhelmed and overworked these days. This is just another burden for them. Tough place to be.
 
QContinuum said:
He’s a single doctor. Not a published peer reviewed study.
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Obviously you didn’t look him up.

“World-renowned pediatric gastroenterologist, research scientist and entrepreneur Dr. Alessio Fasano is chief of Pediatric Gastroenterology and Nutrition at MassGeneral Hospital for Children (MGHfC). Dr. Fasano directs the Center for Celiac Research, specializing in the treatment of patients of all ages with gluten-related disorders, including celiac disease, wheat allergy and gluten sensitivity.”

So, yes, anything you read about Celiac from the Center for Celiac Research is directed by him.

Here is the deal. If it effects you, don’t eat it. If it doesn’t and your doctor is fine with a once a week consumption of a small host with less than 10 parts per million, then go for it.

My doctor is fine with it. My scopes are clear, showing no signs of Celiac. And I have been receiving the low gluten host for 12 years, (My doctor asked me not to try it for a year after diagnosis.)

And for others in this thread: If these “low gluten” hosts were for sale in the store, rather than being marketed for the Catholic church, they would be sold as “gluten free.” They meet that standard.
 
QContinuum said:
Yeah, but to be honest with you, Celiacs regularly deal with skepticism and ignorance even in the medical and secular fields. To be fair, I am not surprised Catholic clergy are mostly unaware
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Yep. And it doesn’t help when a person comes to an usher or sacristan or EMHC and asks “can I have a gluten-free host?” and the person happily replies, “Sure!”. (And yeah, I’m that guy who responds “we don’t have ‘gluten-free hosts’, but I can make sure that a low gluten host is consecrated at the altar today for you; would you like that?”)
maryjk said:
And for others in this thread: If these “low gluten” hosts were for sale in the store, rather than being marketed for the Catholic church, they would be sold as “gluten free.” They meet that standard.
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Some do and some don’t. And, as Kindness and Q have pointed out, even for those <20ppm, “low gluten” =/= “gluten free”, and may have effects for some.
 
Gorgias said:
Some do and some don’t. And, as Kindness and Q have pointed out, even for those <20ppm, “low gluten” =/= “gluten free”, and may have effects for some.
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But didn’t say that they couldn’t effect some. I said that they would be sold as “gluten free.” Just like so many other products.
 
You do realize the doctor wrote the biio himself, right? He opened a business … His own practice…with a name implying he is the national authority.

Mayo Clinic, Northwestern, John’s Hopkins, Mt. Sinai…they all recommend a strict zero gluten diet for celiac patients. Countless celiac patients get sick from products like Cheerios which are prominently and legally labelled “gluten free” but actually have up to 20 ppm gluten.

How about we stop arguing that celiac patients must be poisoned?

Further, you keep talking about your great results from scopes. Well, this is the thing. The Colon has a large surface area and for Celiac testing, they do an endoscopy with multiple biopsies. It is very common to get false negatives given damage is not uniform…if the biopsied miss the damage, it’s a bad result. Further, just looking is useless. When I was first tested the surgeon came in afterward to say he saw no damage. After the biopsies were reviewed at the lab he called to tell me my results were off the charts positive and his original assessment was totally wrong.

If a Celiac patient tells you “I have zero tolerance of gluten” leave them alone. Don’t bully them over it. I know if I am having a seizure or cannot see or my skin blisters after consuming a trace amount of gluten.

Glad you love this doctor…they do not agree with their colleagues on this issue. I wouldn’t see this doctor.
 
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I’m really surprised that you have problems.
One parish that I used to be a EM we had a
child who could neither eat the body nor
drink the blood. The family would notify
the priest a minimum of ten minutes prior
to Mass that they were their and prior to the
Mass he would prepare an injection needle
with the consecrated wine, and at communion
time we would inject it into the child.
 
Kindnessmatters said:
If a Celiac patient tells you “I have zero tolerance of gluten” leave them alone.
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I am a Celiac patient. And I am someone that if I receive just a little cross contamination, I am sick for weeks.

I get it.

So, how about this? Don’t presume that because either of us are Celiac, that we know all that there is to know about the disease. That we listen to our own doctor.

For you, since your priest will not offer a safe communion, your options are to allow that or take it to a higher level.
 
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