Me and my Parents

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My father’s blood pressure crashed last night. Apparently he has developed an infection from the catheter. I had to call 9-1-1 last night and he is now in the ICU. It is very serious.

I ask for everyone to pray for my father.
 
rpp, I’m sorry to hear that your father has taken a turn for the worst. Praying for him, and for you!

God bless you for taking such responsibility toward your parents. I am headed down the same road – Mom is 80, Dad is 87, and they are of the same mind-set as your parents, not wanting to ask for help, etc. They live in the same house I grew up in, about 15 miles from here but past the outskirts of town. Mom was in and out of the hospital three times earlier this year, and I was very involved in her care and in helping Dad while she was there. Both are quite limited in the amount of driving they can do (this is a good thing because we don’t want them on the road!), so I do quite a bit of “chauffeuring” for them, taking them for doctors’ appointments and such. They still do OK in the house by themselves, but that could change in the twinkling of an eye given their ages and general health.

I returned to my hometown area back in 1999, partly because I knew that they would be needing more and more help as time passes. I am blessed to have a second-shift job, so I’m free during the day if they need me. Sometimes it’s a balancing act between giving them enough independence to preserve their dignity and stepping in to protect their safety. And it’s also a balancing act between caregiving for them while maintaining our own lives and stepping back to “recharge” so we don’t burn out. Others have given you some excellent advice. Just remember to take care of yourself – you will be of little use to them if you are so burned-out you can barely function.

Just as you said about “returning the favor,” one day my mother was guilt-tripping about my having to haul her all over the county for doctors’ appointments. I reminded her that she had hauled me all over the place every week for music lessons, Youth Symphony, Girl Scouts, and you-name-it, and now it’s payback time.

This phase of life has its challenges, to be sure, but at least we can rest easy knowing that we are trying to help them, and that we won’t have to feel guilty or sorry later that we ignored them in their time of need.

Praise God for your conversion! May our Lord and our Blessed Mother give you the strength to deal with whatever comes your way. St. Camillus, pray for us!
 
Thank you CarrieH and Rayne89 for you prayers and words of support.

My father is still in the ICU where I spent all of yest4erday and a good part of today (I cannot ignore my mom). He is improving and his heart has returned to a normal sinus rhythm.

I am tired now and hope to be able to give a better update tomorrow.

God bless all of you who have prayed, but not posted, for my father.
  • Richard
 
My father is still in the ICU, but he is improving. He should be out of the ICU in a day or two and perhaps home from the hospital a weeks or so after that.

Thank you for all your prayers.
 
Well, dad is out of the hospital and in a convalescent center. He should be home is a couple of weeks.

Thank you all for your prayers.
 
Rpp,

When your dad is being discharged, you will have to meet with the social worker of the nursing home. When you are speaking with her, request a VNA service to come home with him for a few week,and also a referral to a homecare agency. The homecare agency will be able to come in once the VNA is out, and provide services (homemaking, laundry, showering, etc. They may or may not be able to provide skilled nursing treatments). They come into the home and help keep the elder at home. Their WHOLE job is to keep people out of a nursing home for as long as possible (ie as long as it is safe). They can provide respite care so you can go out and do things for yourself, whether it’s to go to the gym, take a vacation, or whatever. Do yourself a favor and look into it. We have a sliding scale at my agency, everything from a voluntary copay to full boat and it all depends on how much money someone makes. Please please please look into it. It will be VERY helpful for both you and your parents.

Your parents will maintain their independence in the community, and you can go back to just being able to enjoy your time with them, instead of feeling any burden about being the primary caregiver.
 
Rpp,

Yikes, I missed all this with your Dad. My prayers are with you as you go through all of this.

The Previous Poster had some good advise for you and you parents.

Brenda V.
 
Rpp,

When your dad is being discharged, you will have to meet with the social worker of the nursing home. When you are speaking with her, request a VNA service to come home with him for a few week,and also a referral to a homecare agency. The homecare agency will be able to come in once the VNA is out, and provide services (homemaking, laundry, showering, etc. They may or may not be able to provide skilled nursing treatments). They come into the home and help keep the elder at home. Their WHOLE job is to keep people out of a nursing home for as long as possible (ie as long as it is safe). They can provide respite care so you can go out and do things for yourself, whether it’s to go to the gym, take a vacation, or whatever. Do yourself a favor and look into it. We have a sliding scale at my agency, everything from a voluntary copay to full boat and it all depends on how much money someone makes. Please please please look into it. It will be VERY helpful for both you and your parents.

Your parents will maintain their independence in the community, and you can go back to just being able to enjoy your time with them, instead of feeling any burden about being the primary caregiver.
Thank you but I am way ahead of you on this. 🙂

Last evening I interviewed my first candidate for home care for my parents.

My father is getting stronger but is still pretty weak. My mom is having some more tests tomorrow, but has not felt very well for several days. I suspect she is not eating well.

As for me, I am doing fairly well. Tired all the time, though. Now I go to work to rest. 🙂

Again, thank you all for your prayers.
 
rpp, Just found this My prayers are with your Dad and Mom, I hope your Dad is better and that your Mom is OK! Praying for you also!🙂
 
It has been a busy weekend.

Friday night, my father had a nasal feeding tube inserted. While he is alert, he just does not have enough lung capacity to eat and breathe. He only has a couple of teeth left and he has to gum his food. It is a lot of work.

He is also an extraordinarily picky eater and basically refuses to eat the admitted low quality food at the convalescent center. I have been making and bringing food to him every day, but he simply stopped eating. While we do not kn ow his current weight, he is probably back to about 100 pounds, possibly less. He is 5’10 or 5’11.

The tube does not interfere with regular eating and we presume it is temporary.

They give him food via the tube overnight. They do not run it during the day in the hope he well eat at least some of the (admittedly barely palatable) food.

Now that he has been receiving food via the tube, he is getting better very quickly. He is brighter and more energetic, though he is still bed-bound. His oxygen has been increased to 4 liters. He is scheduled to have a couple of medical appointments on Wednesday at the VA hospital across, but I am not sure he will be well enough for me to take him in my car. I will have to make a decision tomorrow.

My mom is getting worse. She keeps trying to change her prescriptions around and is very frustrated that I won’t cooperate. When I say change her prescriptions, she wants to take the medicine not in the way it was prescribed, either increasing or reducing dosages or frequency. She also wants to start taking medicine which was discontinued.

She is also developing some very bad eating habits. Before I can get home in the evening and before Meals-on-Wheels arrives, she drinks a bottle of Ensure or some other liquid food. Then she is not hungry and cannot eat real food. Essentially, she is trying to live on a liquid diet. I do not think she is doing this intentionally, it is just that she is hungry and this stuff is easy. She is also a bit overweight and I think she is trying to lose weight. That is not the way to do it!

We talked about her diet last night and I think she understands that she needs to wait. If she keeps this up, I am going to not purchase this liquid food anymore, or at least hide it. (By the way, it is more difficult to hide something from a blind person than one would expect!)

Another problems is that I think my mom is getting lonely and bored. As I am at work all day, there is little I can do. Since I need to visit my dad every evening while he is in the convalescent center, my time is divided.

I am getting pretty tired. Tonight, after a bit of schedule juggling, I will have a second interview with someone who will be able to help out with my mom a few days a week. My son returns from his internship tomorrow so tonight is my last night sleeping on a bed until he moves into his new place near his campus.

Life is so busy! 🙂
 
I’m concerned about the animosity you have towards your sister. After all, she is the one who first confronted the problem with your parents. She is the one who flew to Alaska and forced them to move. Where were you? It’s hard to be the one to make the first difficult decision. She did it…I respect her for that.

And I’m concerned about your comment that she has a ‘mid-six figure income’ and that she ‘forced’ your parents to pay her back…especially when down your post further you let us know money isn’t really a problem. (not your exact words). So, why shouldn’t your parents pay for what they need when they have the funds? That seems completely legitimite to me. No offense, but you sound kind of jealous. I think you should try to repair things with your sister. She doesn’t sound so bad. She obviously has a different life than you, but you both care about your parents in different ways. And you both have different strengths.
I think this is unfair in the extreme. My antennae went up at hearing the sister forced her parents to reimburse her for her expenses and is pushing for power of attorney, etc. Wow! I don’t see jealousy at all; I see someone wary of a sibling who may want to take advantage of elderly parents.

rpp; my hat is off to you. We tried having my mother in law live with us when she clearly couldn’t take care of herself; moved her down from New England, and discovered very quickly she was suffering from dementia. She wandered at night, trying to escape…terrible. So, despite our best intentions, she ended up in a nursing home fairly soon - the last thing we wanted to do.

Rpp - you sound as if you have your head on straight and your heart in the right place. What a wonderful son you are. Please take time for yourself (sounds as if you will soon be able to, when extra help is in place.) And keep an eye on that sister.

God bless all of you.
 
I will offer up prayers for you and your familyat this difficult time. May God look upon you.
 
My mother and I traveled back our home town last weekend for my father’s funeral. My mother traveled against medical advice.

We buried my father on Monday this week. We had a beautiful funeral Mass then proceeded to a military cemetery for the military internment ceremony as my father was a WWII combat vet. There was an incident at the funeral during the flag-folding ceremony that caused my mother much pain. It seems the funeral detail refused to recite a traditional poem that they had earlier agreed to say. The reason is that the poem contained references to God.

Anyway, my Mom and I are back home now. Things are starting to get into a routine. This whole thing is only starting to hit us. I am very worried about my mother. About six weeks ago, about the time my Dad first got sick, she decided that she would live on a liquid diet. I did not realize this at first as I was very busy taking care of my father. But she has lost 15 pounds since then and that is very bad. I have brought this up with her doctors and she will not listen even to them. I am very worried, frightened actually, that she is starving herself. What is worse, I do not know if she is doing it intentionally or unwittingly. I seem powerless to stop it.
 
Today, my father passed away.
Oh, my, another one that slipped under my multiple times a day check on the forums! I will pray for the repose of your dad’s soul and for your mother.

Brenda V.
 
UPDATE

Well, lots has happened since the beginning of November. The issues with my sister have come to a head. And my brothers and I have finally come up with a good plan to help my mother.

About 4 days after my father passed in October, my sister’s daughter, my niece, offered to help my mom sell my parents car (she is legally blind so the car was not needed anymore) as well as to help organize her bills. Foolishly, both my mother and I agreed to this. Predictably, things did not work out quite the way we expected.

My niece quickly turned over all the financial information to my sister. On the next business day, someone, we do not know who, tried to impersonate my mother with my parents bank and investment company. They had all my parents info, SS no., mother’s maiden name, account numbers, etc. Fortunately, this person failed because the people she spoke with actually knew my mother personally. My parents still had their account in their small bank in Anchorage. A person called pretending to be my mother and was trying to get the balance of my parents checking and savings account transferred to another account at that bank that had been opened two years previous under my sister’s name. The customer service person on the other end remembered my mother and knew she was legally blind. She told the person calling that the bank was having momentary computer problems and could she read her the closing balance on the most recent statement. This person did that, reading the correct balance. Upon hearing that, the bank employee said the computer problems prevented her from doing any worked and politely asked the caller to call back the next business day. She immediately put a freeze on the account and notified my mom at my home. We immediately went to work dealing with this and protecting my Mom’s accounts.

Meanwhile, my niece sold my parents car. We have a bill of sale for $2650. Yet when the gave my mother the check, they refused to give her the whole amount. Instead, at my sister’s and nieces insistence, they only gave her $1250. The balance was to compensate my sister even more for her personal expenses when she went to Alaska in August.

My sister has never provided a single receipt for any expenses she incurred.

When I said (admittedly not very politely, but not **too **rudely) that she needs to provide some documentation for these expenses, she exploded. Literally. First she and my niece get my Mom on the phone and, according to my Mom, start scolding, then yelling, the screaming at her, complete with profanity. According to my phone records, the call laster about 30 minutes. Sadly, I was not at home at the time. An 83 year old woman should NOT have people screaming profanities at her.

Later that day, my sister began an email rant that went on for days and can only be described as character assassination. She, her husband and her daughter were were spewing so much hate and falsehoods, and utter vulgarity, that it was breathtaking to behold. Other than a one single-sentence response to one of the message saying that it was very “inaccurate” and “defamatory”, I chose not to respond.

As a consequence, my mother has decided that she has had enough. My Mom wants no more contact with my sister, something all my brothers think is a good idea. And my mother has a new will leaving my sister only $1. We also, at the lawyer’s suggestion, have written statements from all my brothers that they have talked to Mom about this, believe her to be in her right mind and acknowledging that she wants to exclude her daughter from any inheritance.

Okay , end of painful stuff. Now good news.

Last week, one of my brothers, the professional homeless one, moved up here from the Midwest to help with my mom, at our invitation. After my Dad’s death, this brother, call him “P.”, seems to be trying to patch over whatever rifts he has with the family. So far, he has been extremely helpful and a great relief to me. He is living with us so it is an interesting situation. He is very willing to abide by the reasonable rules of the house (e.g. no smoking indoors). So far so good. 👍
 
I’m surprised you let your sister’s daughter anywhere near. You know what they say more often than not about the apple not falling far from the tree.
I am glad your long lost brother is there. Hope he can find some peace.
 
Good news. Thanks for sharing. I will pray that your brother continues to be helpful and follow the house rules.

Brenda V.
 
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