Answering this and another post - YES! Many, many people in the Down syndrome community have reached out to Mrs. Palin and asked her to share her experience with early intervention, therapies, nutritional stuff, balancing family life when having a special needs child and she does not even have the courtesy to engage. Folks close to her report the family is doing nothing for Trig. It is appalling.
And yes, the two major organizations, who of course were inundated with membership calling for her as a speaker, have reported that she has been repeatedly invited, but the travel honorarium is not enough - she demands money on top of expenses and a heck of a lot of it. She is already rich beyond measure with speaking fees, but she won’t take a few hours to fly free to a convention, speak, eat for free and return.
Appalling.
Sadly, many pundits are already “diagnosing” delays in Trig due to lack of developmental care, but I don’t go that far. I don’t think we can diagnose a child by simply seeing him being held, exhausted in his Mom’s or sister’s arms at an event. They may not be helping him to reach his full potential, but I don’t think any of us can diagnose the results for sure. When kids with DS get exhausted, their already low tone results in a very slack expression and they appear to be more delayed than they really are.
All this is to say that as far fetched as my own opinion of the Palin’s not stepping up to the plate may sound, I was usually the more forgiving voice among hundreds of thousands who truly feel this woman is doing a lousy job both of raising her son and of neglecting the community which they are a part. She appears to be using/exploiting her son as a prop, and her heroism in having him as a heroic virtue. And if you have no dog in that fight, to criticize her is called, “anti-disability.” But within the big world of parents with special needs kids, especially the Down syndrome community, she has few fans.
As I said - the last convention I went to was the Down syndrome Congress Annual in Sacramento 2 years ago. I talked to dozens and dozens of people who each did the same and never ran across one person who had anything but disdain for her. Even the international members discussed the fact that poor USA had this famous politician with a new baby with DS and she was totally disengaged from Down syndrome advocacy, community, research and health. This was THE talk that year.
You don’t want to know how badly she is ripped by the mothers who quit good jobs and families who sacrifice to provide top-notch care for their children. Ouch! She is NOT loved in the disability community.