D
Domer90
Guest
Please PM if you like. I think I quite understand your trials.
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Domer90
Guest
If you have to get a diagnosis from an out-of-network doctor, it is well worth it because then you have an educational and medical diagnosis. You can get services from school and outside school. I know the waits in some places are terribly long.
God luck and God bless.
God luck and God bless.
T
TheLittleLady
Guest
The NCEA has resources
https://www.ncea.org/store/detail.aspx?id=ADM-22-1529
https://www.ncea.org/NCEA/Learn/Res...bsiteKey=60819b28-9432-4c46-a76a-a2e20ac11cfd
I’ve posted this before, but, it can help to revisit
www.ncpd.orghttps://www.ncea.org/store/detail.aspx?id=ADM-22-1529
https://www.ncea.org/store/detail.aspx?id=ADM-22-1529
https://www.ncea.org/NCEA/Learn/Res...bsiteKey=60819b28-9432-4c46-a76a-a2e20ac11cfd
I’ve posted this before, but, it can help to revisit
www.ncpd.orghttps://www.ncea.org/store/detail.aspx?id=ADM-22-1529
W
Wendy1989
Guest
I’ve been reading through your ordeal with a lot of advice. I was diagnosed back in the 70s with what is now called ADHD. I was put on ridalin and that didn’t work then I was put on dexidrine. Yeah - I was taking speed.
Believe it or not, coffee and tea (without sugar or sweenter) did help me as did keeping away from a lot of dyes in foods as well as additives. Sugary breakfast cereals were out as were sodas and other popular kiddy drinks. This ‘diet’ advice is really just common sense.
Most people with ADHD are multi-taskers. What I’ve found in my later life is that when I need to concentrate on something, I’ll hold onto a stress ball or some therapy putty and just roll it in my hands. Also, listening to classical music while trying to read or when I work really helps. Keep the music quite and in the background. The complexity of the music occupies parts of the brain. I got hooked on Gregorian Chant this way!
I, too, was uncoordinated. I still am to a degree. While everyone else was jumping rope, I couldn’t. I had trouble learning to tie my shoes. The one thing I wish was that my parents had taken me to get a true eye exam. I found I had depth perception issues at 18 - after I had three ‘fender-benders’ while attempting to pull into tight parking spaces. The eye exam is money well-spent and if there are any issues, they can be resolved early and can help with some issues.
I can only give you what I know about myself. People with ADHD don’t necessarily think ‘if A, then B, then C’. Our thinking patterns are different. We have to learn how to use our ADHD to become a gift. This may be a lot of work for your family but this can be done. If your insurance pays for therapy, please utilize it! A good family psychologist can help you and your child work together until you can get an established diagnosis.
Believe it or not, coffee and tea (without sugar or sweenter) did help me as did keeping away from a lot of dyes in foods as well as additives. Sugary breakfast cereals were out as were sodas and other popular kiddy drinks. This ‘diet’ advice is really just common sense.
Most people with ADHD are multi-taskers. What I’ve found in my later life is that when I need to concentrate on something, I’ll hold onto a stress ball or some therapy putty and just roll it in my hands. Also, listening to classical music while trying to read or when I work really helps. Keep the music quite and in the background. The complexity of the music occupies parts of the brain. I got hooked on Gregorian Chant this way!
I, too, was uncoordinated. I still am to a degree. While everyone else was jumping rope, I couldn’t. I had trouble learning to tie my shoes. The one thing I wish was that my parents had taken me to get a true eye exam. I found I had depth perception issues at 18 - after I had three ‘fender-benders’ while attempting to pull into tight parking spaces. The eye exam is money well-spent and if there are any issues, they can be resolved early and can help with some issues.
I can only give you what I know about myself. People with ADHD don’t necessarily think ‘if A, then B, then C’. Our thinking patterns are different. We have to learn how to use our ADHD to become a gift. This may be a lot of work for your family but this can be done. If your insurance pays for therapy, please utilize it! A good family psychologist can help you and your child work together until you can get an established diagnosis.
M
MaryT777
Guest
If you have a referral to a specialist from another Dr.such as a pediatrician you are usually seen much faster than if you call yourself for an appointment.
Just a thought, you may already have one.
Prayers for you. God bless.
Just a thought, you may already have one.
Prayers for you. God bless.
K
katiecall87
Guest
Thank you to everyone who took time to reply to this post. To update you all, I carefully considered medication and he has been taking a very low dose of concerta since May. I honestly can’t tell if it is helping yet. His teacher claimed that he was a completely different child while taking the medicine (in a positive way). To me he seemed the exact same at home. I did, however, notice that he was able to follow instructions a bit better/ not forget instructions quite as often.
He doesn’t seem to be suffering any negative effects from it.
No further evaluations yet. Our family faced some tough times financially and we wound up deciding to move to Texas to be near more family. We are in the midst of that move now. Once things settle down I plan to pursue further evaluation again, in case he is struggling with something on the Autism spectrum.
He is a happy boy, but sometimes I snap at him when I, as the parent, begin reaching my wits end. If our family needs anything right now- it’s more patience.
He doesn’t seem to be suffering any negative effects from it.
No further evaluations yet. Our family faced some tough times financially and we wound up deciding to move to Texas to be near more family. We are in the midst of that move now. Once things settle down I plan to pursue further evaluation again, in case he is struggling with something on the Autism spectrum.
He is a happy boy, but sometimes I snap at him when I, as the parent, begin reaching my wits end. If our family needs anything right now- it’s more patience.
P
Peeps
Guest
I’m glad you moved closer to your family. As I was reading this thread, my brain and heart kept saying, “Move, move, move!”
Urban areas are stressful, especially if you are struggling financially.
I hope you can continue to find answers to your son’s needs. One thing that might comfort you is to know that many parents are in the same boat. I’m not sure why this wasn’t a problem when I was a kid–I suspect that there were just as many children like your son, but that they were not sent to school, but were kept sequestered at home, or worse–sent to an “institution.”
Thank goodness there is help and treatment available today, and support from many sources! The hardest thing, I think, is seeking and eventually getting the correct diagnoses (that’s plural, because many children seem to have multiple issues that require therapy).
And thank goodness that various music, television, and theater stars are “coming out” with either their own conditions (you would be amazed how many actors have Asperger’s), or with their children’s conditions. I think this helps parents not feel so alone and hopeless.
There is a high percentage of hospital lab workers who have been diagnosed with Asperger’s, BTW. (I work in a hospital lab.)
Urban areas are stressful, especially if you are struggling financially.
I hope you can continue to find answers to your son’s needs. One thing that might comfort you is to know that many parents are in the same boat. I’m not sure why this wasn’t a problem when I was a kid–I suspect that there were just as many children like your son, but that they were not sent to school, but were kept sequestered at home, or worse–sent to an “institution.”
Thank goodness there is help and treatment available today, and support from many sources! The hardest thing, I think, is seeking and eventually getting the correct diagnoses (that’s plural, because many children seem to have multiple issues that require therapy).
And thank goodness that various music, television, and theater stars are “coming out” with either their own conditions (you would be amazed how many actors have Asperger’s), or with their children’s conditions. I think this helps parents not feel so alone and hopeless.
There is a high percentage of hospital lab workers who have been diagnosed with Asperger’s, BTW. (I work in a hospital lab.)
T
Theo2
Guest
If you can’t afford the cost tell them, they may be able to help get you a scholarship.
A
Ardent_Fire
Guest
I am married to someone with ADHD in the adult form. Earlier in the evening he offered to help me when I was cooking and cleaning. Fast forward to midnight and me trying to be patient but failing miserably and reaming him because he had several hours but did absolutely nothing of what I asked him to do. Business as usual. 