It might sound a bit cliché, but it’s probably going to be the why question. Fortunately, I made a full recovery, I don’t need medicine and my illness doesn’t affect my life in any way. Which is even more reason to ask the Designer if it was really necessary that my own body turned on me and caused so much anxiety, especially for my parents. There was a real possibility that my parents would lose their two year old child. I would also tell Him, with all due respect, that He could have done a better job in general. I survived, but many others do not. Probably more people will be religious if He improves His designing skills.
And that’s the moral issue with intelligent design: the Designer can’t take credit for the good things and escape responsibility for the bad things.
Confession is frequently the shortest way to the truth. And, people’s stories, if you can ever get to them, being the reality of their philosophies, tend to be far more interesting. Yours affirms my faith in God. It is a tale of success, courage and love, here listed in the opposite order of importance.
What follows may ring hollow to you, but it expresses, not as well as I would like, my view of our situation.
I must begin by saying that you should feel thankful, as you likely are in spite of the fact that it happened at all. Similar circumstances can yield very different outcomes.
Let’s look at our human condition. We have an immune system which maintains the physical integrity of our bodies. While illness is thought of as being other to the person who suffers, it is actually a part of what we are. If there is a “bad thing”, be it an autoimmune disease, cancer, the inability to fight an infection, it boils down to it being integral to the person. Suffering is inescapable in life. There is a sense of brokenness that accompanies us after such encounters. Now, the child does not bring him/herself into existence nor do the parents create them, but guilt emerges along with a sense of defectiveness. Emotionally speaking, children tend to blame themselves and also their parents; parents vice versa. The challenge faced by the family can bring it together, but it is not uncommon to see the dynamic tear it apart. It can remain intact as reason and defenses take over and the blame is cast off onto nature, God, or perhaps the medical profession when things don’t work out.
At least if one blames God, there is a chance of reconciliation through the dialogue. Otherwise we are left with a view, if we matter at all, of a cruel nature which will ultimately take everything from us.
But, as you experienced, people care and act courageously. We do matter to one another; there is love. And that is one of the many reasons why I am a Christian, because your story is one of many, many others which do not turn out so well. Human beings have the capacity for much good and much evil. I could not possibly be a humanist with what I have experienced. It comes across to me as a very pleasant vision, but one seen through a distorting lens that denies the truth of evil. When all hope seems lost, a greater truth is there. As a Christian, the symbol of transcendence is the Cross. Suffering has meaning; and God is with us every step of the way, as were your parents in the hospital with you. The sacrifice of Jesus does many things including the revelation of God’s love for us. It is within the Sacred Heart of Jesus that we find peace, strength, the courage to carry on and true healing, spiritual if not also physical, a return to wholeness.
Why this stuff happens to good people, as if bad people were more deserving, has been written about forever actually, going back to Job in the Judeo-Christian tradition. There are better sources than Internet forums that you might wish to pursue. Ultimately, it is up to us to find the answer as it deals with the meaning of our existence.