My prenatal exam showed Trisomy 18 high risk

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MarthaSo said:
My mothers instinct is telling me if I never showed up again until delivery everything will be fine.
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This is one reason why I loved going through a midwife - less pressure for multiple interventions. I had out-of-hospital births, but midwives also work in hospitals.

Obstetrics has gotten so litigi-phobic that women are now placed on an assembly line full of multiple, overkill interventions that they very often don’t need . . . but that give the OBs peace of mind. (They’re ultimately scared you’ll sue them if you don’t have the Perfect Baby). But you are NOT responsible for accommodating and assuaging those fears.

I’m by no means saying that everyone SHOULD use a midwife, but always remember that you have a choice to say no to different steps on the assembly line. I actually left an OB who put up a fight every time I so much as suggested foregoing an intervention.

But a provider worth your business will respect your right to informed consent . . .and informed refusal.
 
Absolutely true! Thanks so much for sharing. What bothered me is the actual attitude I got when I refused 2 exams that I know were not necessary and he said “well you’ll have to sign that you refused”. I said sure I’ll sign. But I guess it’s due to, as you said, covering themselves. I do understand since they’re just doing what I suppose is normal protocol but honestly it has gotten to the point where they offer abortion alternatives as breezily as if they’re offering a sandwich. That is what’s scary and makes me angry. The lack of humanity, lack of heart some of these doctors have. I get the sense this is their way of being the consummate “professional” as if showing a bit of compassion is gross negligence and just will not do. Abhorrent.
Thanks again for sharing here, I appreciate all the support very much.
 
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Prayed for you and Matthew tonight during my silent intentions - God bless you both.
 
Dear mom, I am a mother of a child who was born with trisomy 18, Daniela. She saved my life and even though I can’t get into the specifics of it all, because it would be hard for others to believe, I can tell you this, the most amazing miracles happened to me through this child and my pregnancy with her. She is the sole reason we are all now Catholic. She did not come empty handed, she came with many graces and gifts for all of us. It’s true, this is not an easy diagnose, but God’s plan is always perfect, even if we, imperfect beings can’t understand it. Some children with this condition can live short and some long lives. Many grow up to be the joy of their family, for example: Bella, Rick Santorum’s daughter. These children are God’s creations and come bearing gifts. I will pray for you. Enjoy your pregnancy and offer her up to the Virgin Mary, she will guide you through all of it and help you with your child. By the way, we were not even religious when she was born. She is a Saintly gift even if other’s don’t know that about her. Praying for you and your family.
 
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Dear MarthaSo,

I’m coming late to this thread, but on an opportune day, since it is the Feast of Our Lady of the Miraculous Medal, Nov. 27th

Perhaps you already wear a Miraclous Medal and have devotion to Mary, our Mother and Model for the Church. I hope you do. I noticed your “username - MarthaSo” and thought of Jesus’ words to Martha, that she was busy about many things but only One was necessary. He also told her that her sister Mary, sitting at His Feet had chosen the better part and it would not be taken from her.

Martha must have taken Jesus’ words to heart for today we count her among the saints and when we read the Gospel of John we hear her great confession of faith at the death of her brother:
…Martha said to Jesus, “Lord, if you had been here, my brother would not have died. [But] even now I know that whatever you ask of God, God will give you.” Jesus said to her, “Your brother will rise.” Martha said to him, “I know he will rise, in the resurrection on the last day.” Jesus told her, “I am the resurrection and the life; whoever believes in me, even if he dies, will live,[ and everyone who lives and believes in me will never die. Do you believe this?” She said to him, “Yes, Lord. I have come to believe that you are the Messiah, the Son of God, the one who is coming into the world.” (Jn 11: 21-27)
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When Jesus was dying on the Cross, He said to John and to us all: “Behold Your Mother”. When we look at Mary, we see the model of a pure heart, a simple human person who followed Jesus perfectly. Jesus knew we would need such a Mother to help us. John took Mary into his home and into his heart.

Today’s feast is not on most calendars but it is celebrated in some places and many people continue to wear and receive God’s graces through the Miraculous Medal. You can read more about Mary’s appearance to St. Catherine Laboure and Mary’s giving the medal to Catherine whose own mother had died when she was little and Catherine took Mary as her Mother. If you’d like to read more, see HERE

You and your baby will be in my prayers today, especially my Rosary. May our dear Mother Mary, Patroness of the Unborn, watch over and protect you and your child, and draw you both closer each day to the Heart of her Son, Jesus. Jesus we trust in You!
 
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Good morning Martha. I am just wondering how your pregnancy is going so far. You are all still in my prayers.
 
Oh thank you so much. It is going well. I’m a little distracted by all this home decorating i want to do. It got to the point I was on Amazon looking at throw pillows for an hour and all of a sudden decorating is bombarding my mind. It’s so weird to be honest. I’m not even reading the Magnificat in the mornings anymore. I asked God to please remove this strange new obsession of mine because I feel farther from him.
It really is the oddest thing for me to be all of a sudden not happy with my throw pillows and coffee table. I partially blame it on these youtube videos I’ve seen of living room makeovers, still , that it captured me so much is almost eerie.
Other than that, I’m trying to eat healthy and be positive. Thank you so much for asking and your kindness and prayers! May God bless you!!
 
When I realize what I’m doing I just ask for His forgiveness. Most of the time I didn’t really need whatever it was I was looking for anyway.

Stay well my friend and know so many people hold you and Matthew in their prayers.
 
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Martha,

I’m so sorry to hear that what should be a joyous and expectant time is overshadowed with worry and fear.

There is a video on YouTube about a couple in your situation. They video journaled the testing, the result, the birth, baptism and naming of their son and taking him home to get to know him. They dressed him, snuggled him, bathed him, sung to him and showed him nothing but love and warmth his few days on earth. For them, it was incredibly healing to acknowledge him as the human being he was.

I don’t know what will happen with your little one but I am thankful you’re giving him or her the opportunity to meet their mom & dad, to know love and tenderness while they’re on this earth - whether it be one hour or 90 years. May God bless you with peace and strength.
 
MarthaSo said:
I already love this baby and read the Magnificat to him in the morning
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That’s a wonderful Prayer, praying it, as many times as possible, is very powerful prayer, continues to do, so or at least say it 9 times as an novena Don’t worry trust in God

Divine Mercy Chaplet is also nice and powerful, Luke 1:37 For nothing will be impossible with God.” 38 Then Mary said, “Here am I, the servant of the Lord; let it be with me according to your word.” Then the angel departed from her.

Psalms 131:1 O Lord, my heart is not lifted up,my eyes are not raised too high;
I do not occupy myself with things too great and too marvelous for me.2 But I have calmed and quieted my soul,like a weaned child with its mother;my soul is like the weaned child that is with me.
3 O Israel, hope in the Lord from this time on and forevermore.

Psalms 139:13 For it was you who formed my inward parts;you knit me together in my mother’s womb.14 I praise you, for I am fearfully and wonderfully made.Wonderful are your works;that I know very well.15 My frame was not hidden from you,when I was being made in secret,
intricately woven in the depths of the earth.16 Your eyes beheld my unformed substance.In your book were written all the days that were formed for me,when none of them as yet existed.17 How weighty to me are your thoughts, O God!How vast is the sum of them!18 I try to count them—they are more than the sand;I come to the end—I am still with you.
 
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Just checking in to see how you and little Matthew are doing. Still praying!

Blessed Mother, please intercede for us.
Hold the sorrowful-
Mother and love the weary, abused, neglected
or forgotten among us-
Give your aid to all needing help or healing-
Assist those who are sick, in pain or suffering-
Be with those needing peace-
Console the lonely or brokenhearted-
Comfort the lost or hopeless-
Strengthen the fearful-
Guard the unborn-
Pray for those who are dying or who have died-
Soften those with hardened hearts-
Enlighten those who do not yet see truth-
Help us be brave enough to let our hurt and anger go-
Show us the way to do the right thing-
Protect those who are in danger, and
Guide us from every evil.
May all who keep your sacred commemoration
experience the might of your assistance.
Amen
 
Hi,
I have a potential genetic disorder. So this post really, really affects me deeply.
I grew up normally in my childhood but now I am having seizures- I am 23 years old, but now I am unable to go to school due to a disease that might be a mutation in the mitochondria.
I know how hard this is for you and for your family, and I know how this fills you with grief.
But please know that there will be a lot of opportunities for your baby like myself; I am currently accepted to the University of Calgary in the Faculty of English, and I am a music student specializing in high voice (soprano). I am using a wheelchair from time to time but my professor has been highly accomdoating and said, “Gifts do not come in boundaries.”
Please know that there will be many opportunities for your child- and there will be a bright future for your family. And the Lord will always be with you all the time.
 
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